art3 Posted April 7, 2008 Report Share Posted April 7, 2008 hi allklonopin for the last 2 yrs has been a godsend-it relieved much of my lightheadedness, fatigue and neupathy etc.. in last 5 days its doing something else-im drowsy all the time. feel groggy etc.. what one earth is going on? we tired blood rpessure meds etc with no great help-klonopin did. noone here knows what to do. im in terrible agony. ive got gret insurance and medicare-where can i go to get this finally diagnosed fully etc? ttylthanksart3 intx Quote Link to comment Share on other sites More sharing options...
pat57 Posted April 7, 2008 Report Share Posted April 7, 2008 Ask around, in your area, for a diagnostician. good luck! Quote Link to comment Share on other sites More sharing options...
Megan Posted April 7, 2008 Report Share Posted April 7, 2008 Are you sure it's the klonopin doing those things? Just something to think about.Meg Quote Link to comment Share on other sites More sharing options...
Eillyre Posted April 17, 2008 Report Share Posted April 17, 2008 Have you tried searching the MD list on the Pots Place site?I was originally seen by a cardiologist, initially diagnosed by an electrophysiologist, then had the diagnosis confirmed and started a helpful treatment regimen out at the Mayo Clinic.Hope you can find someone to help soon!Angela Quote Link to comment Share on other sites More sharing options...
Sunfish Posted April 17, 2008 Report Share Posted April 17, 2008 hi art - aside from looking at DINET's physician's listing (as angela suggested), if you let us know what part of the country you're in people may be more likely to chime in with some suggestions/ thoughts for you. i know you said you're able/ willing to travel, but it usually still makes sense to pay some attention to where you're coming from. melissa Quote Link to comment Share on other sites More sharing options...
art3 Posted April 20, 2008 Author Report Share Posted April 20, 2008 hiIm in houston tx. sufering from severe lightheadedness, sweating, neuropathy etc.. ive had tilt table showing mild pots-but things are far worse. im sosick of this with no real help-art3hi art - aside from looking at DINET's physician's listing (as angela suggested), if you let us know what part of the country you're in people may be more likely to chime in with some suggestions/ thoughts for you. i know you said you're able/ willing to travel, but it usually still makes sense to pay some attention to where you're coming from. melissa Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted April 22, 2008 Report Share Posted April 22, 2008 Hi!Have you tried these?Texas Dr. Benjamin D. Levine, Professor of MedicineInstitute for Exercise and Environmental Medicine Presbyterian Hospital at Dallas7232 Greenville Ave.Dallas, Texas 75231214-345-4626Will treat children 15 years and olderDr. Levine is currently examining the mechanisms behind the remarkable gender specificity of POTS. Interested, newly diagnosed patients who live in the area can contact his office for further information.Dr. Gil I. Wolfe Department of NeurologyUT Southwestern Medical Center at Dallas5323 Harry Hines Blvd.Dallas, Texas 75235214-648-9574PAF, Autonomic Peripheral NeuropathiesAutonomic LaboratoryTreats adultsDr. Amer Suleman4510 Medical Center Drive Suite 300Mckinney, Texas 75069214-504-9942POTS, NCSAutonomic LaboratoryTreats adultsDr. Suleman is an electrophysiologist with a special interest in dysautonomias. Or many people see Dr. Grubb in Toledo, OH, drs. at The Mayo Clinic in Minnesota, or Vanderbilt in Nashville.Also, if things were fine with the Klonopin for two years, it would be more likely that something else is causing the change. Have you talked with your primary care doctor or any of your local doctors about the most recent change? I think it would be important that at least a physician was asked in regards to your new symptoms. You could also ask your pharmacist, just to make sure nothing has changed with the medication itself. Sometimes if they change generic brands people can have different reactions due to how it is formulated to be absorbed within your body. Not likely the case but a possibility.Hope you find some help! Quote Link to comment Share on other sites More sharing options...
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