I haven't been around in months. So many things started piling up, and dysautonomia went to the back burner. I'm sorry to have disappeared on all of you. Things have gotten serious so I hope some of you out there can relate to my problems and maybe suggest some roads to take or not to take. My digestion: Went from bad to worse. I now have the runs almost every day, sometimes a day in between. They are calling it IBS, although my internist thought it could be POTS related, although he said there's still nothing to do. Is there anything to do about this crippling state? I can't seem to find anything I can eat that doesn't cause pain. My other issue which most of you because of your age have probably not faced as yet: osteoporosis. I didn't take any of the drugs because I am SO drug sensitive but over the past year, I lost 10% bone mass and am at great risk of a fracture. They want to give me prolia. It is a serious drug that works though the immune system, lowering immune system functioning. The other choice is forteo, a synthetic parathyroid hormone with shots daily but I have a history of hyperparathyroidism, not a good combo. Anyway,If anyone can give feedback on either of these two conditions, experiences, choices, I would be greatly appreciative!
I hope in my long absence that many of you have gotten better and found answers.