What Is Dysautonomia?
Dysautonomia means dysregulation of the autonomic nervous system. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies.
DINET provides information and personal stories on several types of dysautonomia. You may download our informational brochure HERE.
Dear Friends of DINET,
I am pleased to announce to you our new president! Carrie Burdzinski has graciously accepted the position. She is a biochemistry professor at Delta College in Michigan. She holds a bachelor’s degree in genetics and a master’s degree in molecular biology. Many of you probably already know Carrie from the DINET forum. She is a caring, knowledgeable, and helpful member, and we are grateful to have her stepping into a leadership role with DINET.
Carrie has had dysautonomia since birth, and she understands the challenges that those of us with dysautonomia face in our daily lives. She has a passion to lead DINET and to reach out to those affected by dysautonomia. I have no doubt that Carrie is the right person to lead DINET now. She has great ideas for future projects and fundraisers for DINET, and I believe that DINET will continue to grow in exciting ways under her leadership.
As for me, my fatigue and muscle weakness continue to slowly progress, and I continue to struggle with migraines. I will be scaling back on my already substantially limited activity level. I will be seeking to live well with dysautonomia and will be focusing on being a wife and a mother to the best of my ability. Even though I will not be doing much volunteer work for DINET, you will still find me around online, whether on the DINET facebook page, the DINET forum, or on my blog. Know that you are always welcome to visit me at those places!
Life with dysautonomia is hard, but it has also brought about many good things in my life. Through living with dysautonomia I have learned to have patience and to persevere. I have learned that even when life is physically challenging, there are still ways to do fun things, serve others, and enjoy life. There is hope and joy to be found. I have learned to search for, and fight for, joy. I have learned to embrace this life with dysautonomia and the opportunities that come along with it, such as volunteering for DINET!
I am grateful for all of you here at DINET. Thank you for your friendship and the information and support you have given to me. I know that many of you are very sick, just like me. I encourage you to not lose hope. Medical testing and treatment continues to improve, and there may be better treatment options for us in the future. But even if a cure does not come, life is still a gift. Enjoy it, cherish it, and seek hope and joy. Take the time to serve others. You have a unique perspective and talents to offer to those around you! May each of you live well with dysautonomia.
I have enjoyed my time serving as DINET president, and I am thankful for the various ways I have been able to volunteer for DINET over the years. It has been challenging, rewarding, and fun. Thank you, DINET, for allowing me this opportunity!
It is with a mixture of sadness and excitement that I pass the torch of the DINET presidency on to Carrie Burdzinski. I am eager to see what is in store for DINET in the future. Please join me in giving a warm welcome to our new president, Carrie!
Former DINET President