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    WRITER'S WANTED:  A new writing position is available for DINET's quarterly newsletter.  A writing sample is required.  The sample does not need to be a published article - it can be a story, blog, essay or unpublished article.  The sample should be a good example of your writing skills. The DINET newsletter has been an important part of our patient support efforts and was read last month by over 3,000 members.  This is a volunteer position and is a wonderful way of helping other people who are living with dysautonomia. If you are interested, please send an email with your sample to webmaster@dinet.org

    Would you like to volunteer for DINET?  DINET is an all volunteer organization and we rely on dependable people willing and able to help.    If you would like to volunteer, please contact  webmaster@dinet.org  or visit our Get Involved section to learn more about volunteering. 

  • Dysautonomia is a term used

    to describe abnormal functioning of

    the autonomic nervous system

    Dysautonomia means dysregulation of the autonomic nervous system. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies.

    Symptoms are wide ranging and can include problems with the regulation of heart rate, blood pressure, body temperature and perspiration. Other symptoms include fatigue, lightheadedness, feeling faint or passing out (syncope), weakness and cognitive impairment. 

    Autonomic dysfunction can occur as a secondary condition of another disease process, like diabetes, or as a primary disorder where the autonomic nervous system is the only system impacted. These conditions are often misdiagnosed.

    Over one million Americans are impacted with a primary autonomic system disorder. The more common forms of these conditions include Postural Orthostatic Tachycardia Syndrome (POTS) / Orthostatic Intolerance (OI), Neurocardiogenic Syncope (NCS), Pure Autonomic Failure (PAF) and Multiple Systems Atrophy (MSA)

    DINET provides information and personal stories on several types of dysautonomia. You may download our informational brochure HERE.

  • Do you have a question for our Medical Expert's?

    Medical Q & A         

    DINET's Medical Advisors are physicians who specialize in different aspects of dysautonomia treatment and research.  We are honored that these dedicated professionals share their time and knowledge with us and you!  DINET's Board Secretary & Forum Volunteer, Sarah Abraham, collects questions from DINET members and sends them along to our Medical Advisor team.  Each quarter Sarah prepares the Medical Q & A column for our newsletter and shares those questions and answers with the DINET community.  If you have a question for our advisors, send it along to Sarah at dinetandforuminfo@dinet.org

  • In The News... 

    A New Series presented by DINET and Dr. Svetlana Blitshteyn

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    We're thrilled to share with you that DINET & The Mighty have a new partnership that will bring many resources to our readers! The Mighty is a story-based health community that focuses on improving the lives of people facing diseases and disabilities and shares in DINET's mission of raising awareness for chronic health conditions. More than half of Americans are facing serious health conditions, The Mighty publishes real stories about real people facing real challenges. Visit The Mighty and check out stories like this on Dysautonomia & POTS, "When POTS challenges your identity as an overachiever"

     

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    DINET Announces 3 New Partnerships!

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    Click here to view information on our partners and read about how they strive to impact the dysautonomia community