• What's New?  The Results are in for the Standing Up to POTS survey.  Also posted are a number of studies recruiting patients now.  To learn more about some of the studies being conducted and the new information available, visit our Studies page.  

    Would you like to volunteer for DINET?  DINET is an all volunteer organization and we rely on dependable people willing and able to help.    If you would like to volunteer, please contact  webmaster@dinet.org  to receive a Volunteer Application. or visit our Get Involved section to learn more about volunteering. 

  • Dysautonomia is a term used

    to describe abnormal functioning of

    the autonomic nervous system

    Dysautonomia means dysregulation of the autonomic nervous system. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies.

    Symptoms are wide ranging and can include problems with the regulation of heart rate, blood pressure, body temperature and perspiration. Other symptoms include fatigue, lightheadedness, feeling faint or passing out (syncope), weakness and cognitive impairment. 

    Autonomic dysfunction can occur as a secondary condition of another disease process, like diabetes, or as a primary disorder where the autonomic nervous system is the only system impacted. These conditions are often misdiagnosed.

    Over one million Americans are impacted with a primary autonomic system disorder. The more common forms of these conditions include Postural Orthostatic Tachycardia Syndrome (POTS) / Orthostatic Intolerance (OI), Neurocardiogenic Syncope (NCS), Pure Autonomic Failure (PAF) and Multiple Systems Atrophy (MSA)

    DINET provides information and personal stories on several types of dysautonomia. You may download our informational brochure HERE.

  • In The News...

                                                                                                                                                                                                                 

    A New Series presented by DINET and Dr. Svetlana Blitshteyn

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    Have you heard about our

     

    Forum? Connect with others..

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    Our Forum has over 5,000 members - you aren't alone in fighting your battle with Dysautonomia!  Whether you are a patient or a caregiver, the forum can help you find others who can relate to your journey. Share experiences, tips, and more  Join here


     Do you have a question for our Medical Advisors?

    DINET's Medical Advisors are physicians who specialize in different aspects of dysautonomia treatment and research.  We are honored that these dedicated professionals share their time and knowledge with us and you!  DINET's Board Secretary & Forum Volunteer, Sarah Abraham, collects questions from DINET members and sends them along to our Medical Advisor team.  Each quarter Sarah prepares the Medical Q & A column for our newsletter and shares those questions and answers with the DINET community.  If you have a question for our advisors, send it along to Sarah at dinetandforuminfo@dinet.org 

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