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Studies


edriscoll

Featured below are ongoing studies related to dysautonomia and POTS related illnesses from DINET's team of medical advisors.  We also feature research and ongoing trials from other physician's who specialize in dysautonomia.  To learn more about our medical advisors, please visit the advisor's page here: http://www.dinet.org/aboutus/advisors/  If you are a physician specializing in POTS and other dysautonomia illnesses and would like your research included on this page, please contact DINET at: dinetandforuminfo@dinet.org


Results are in from the Patients Count Study.  This study examined the quality of life for 1500 patients living with POTS and Cluster disorders.  The data is being analyzed and published as it becomes available.  Visit the study page or check back here for updates. 

 


 

Recruiting:  Standing up to POTS is conducting a new study to examine the risk of suicide in chronically ill patients. 

The study is designed to help develop information for professionals to identify patients at a higher risk and to prevent suicidal behaviors.  To participate or learn more about the study, visit the Standing Up to POTS study page.

 


Still recruiting

STUDY BY DINET'S MEDICAL ADVISOR:  DR. SATISH R. RAJ, MD MSCI 

The BIG POTS Study
 

Vanderbilt University and Dysautonomia International have partnered to launch the largest international study on Postural Orthostatic Tachycardia Syndrome (POTS). POTS impacts millions around the world, yet no large studies have ever been conducted, until now. This study enables patients to share their experiences directly with researchers, an important and innovative way to study this illness.

The study's lead investigator is Satish R. Raj, MD MSCI, Adjunct Professor of Medicine at Vanderbilt University's Autonomic Dysfunction Center. Dr. Raj says that the information collected as part of this survey "will help us learn more about the possible underlying causes and risk factors for developing POTS, treatments, and the economic, educational and social impact of POTS on patients and their families". Dr. Raj serves on the Medical Advisory Board for DINET and Dysautonomia International. 

The Big POTS survey is open to all patients diagnosed with POTS by a physician. To learn more about the survey or to participate, visit: The BIG POTS survey

 


Recruiting:    Clinical Autonomic Disorders:  A Training Protocol

The National Institute of Neurological Disorders and Stroke and the National Institutes of Clinical Centers. are conducting this study to learn more about dysautonomias and specifically to use that knowledge to train physicians to better diagnose and treat patients living with this illness.

To participate or learn more about this study, visit the Clinical Trials site.   

 


 The Results Are In - Clinical Invasive Cardiopulmonary Exercise Testing

From the Journal of the Pulmonary Vascular Research Institute

Unexplained exertional dyspnea caused by low ventricular filling pressures: results from clinical invasive cardiopulmonary exercise testing

To determine whether low ventricular filling pressures are a clinically relevant etiology of unexplained dyspnea on exertion, a database of 619 consecutive, clinically indicated invasive cardiopulomonary exercise tests was reviewed to identify patients with low maximum aerobic capacity.

To read the full article:

ncbi.nlm.nih.gov

 


 

 

 


 

Edited by edriscoll

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