• October is59d67d0b44cc4_verticallogo_homePage.jpg.5b1bfe3345598d187b5ad6cd1a4b6619.jpg Awareness Month!

    5 years & 11 months from onset to diagnosis - almost SIX YEARS waiting for treatment! Clearly awareness of dysautonomia is gravely needed.

    DINET is continuing to support patients & spread awareness, but without volunteers & donations we can't exist.  So please consider taking the challenge!

    Take the 5 Eleven Challenge.  #1  Identify 5 people in your life that need better awareness of the illness  #2 Download, email or hand them an info sheet that fits them best  #3 Give them the sheet & ask them to support you & DINET by making a small donation   #4 They can donate using the PayPal Giving Fund or one of the ways on the donate page.  

    It's that easy to make an impact.  We need you to take the step and take the challenge today!

    * Our goal is to inspire each person to donate at least $10 So each member is contributing a total of $50  This is the fundraising goal, however, DINET is greatly appreciative of all donations made to our work.   Sincere Thanks.

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DINET Welcomes Partnerships


edriscoll

DINET is excited to announce partnerships with three companies - Banana Bag Solutions, The Mighty and Outcome Health.  All three companies are dedicated to education and patient support for people living with dysautonomia and chronic illness.  

Banana Bag Oral SolutionsBanana Bag Oral Solutions produces a solution that delivers essential electrolytes and vitamins in a convenient powder blend that is dissolved in water.  Banana Bag recently was a part of a two day conference at Choc Hospital in California called Connecting the Dots between: EDS, POTS, Chronic Pain and Mast Cell Activation Disorder. This is just one of the ways Banana Bag is working to make an impact on the Dysautonomia community. Words from Brian Derry, the owner of Banana Bag Solutions:

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“I would first like to say how exciting this is to receive such wonderful feedback from Dysautonomia patients on how the Banana Bag Oral Solution has helped improve their quality of life.  Comments such as ‘saved me from going to the ER’ or ‘you have given me a part of my life back’ have made me feel like the Pharmacist I’ve always wanted to be...one that truly makes an impact of people’s lives by simple knowledge of what works and what does not….With a strong B-Vitamin complex added to this formula, the Banana Bag Oral Solution also stimulates the body’s natural sources of energy.  This combination of electrolytes and vitamins has really made a positive impact on some people’s daily activities.”

The Mighty logoThe Mighty is an online community for people living with chronic illness. But rather than focus on the medical aspects of disability and illness, The Mighty strives to fend off the isolation that comes with illness by forming a safe community for people to share their stories. From their site:  “real stories by real people facing real challenges”   The Mighty has created a safe platform for people living with chronic illness and disability to connect, share their stories and to raise support for the causes they believe in.

DINET is just one of over 200 nonprofit allies that The Mighty has partnered with to help deliver their excellent resources to the communities they serve.  From the words of Mike Porath, Founder of The Mighty about their overall goals:

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“Stories that inspire people - that can change the path of someone’s day, as my wife says - are a great start, but we are going after much more.  Ultimately we want to improve the lives of people facing disease, disorder and disability.  This is not a small ambition.  It requires a unique business model and strong relationships with nonprofits, advertisers, media companies, researchers, educators, advocates and most importantly, people like you. Without a community of people who care and share, we have nothing.”

Outcome Health.Outcome Health  uses technology to educate patients and physicians where it can have the most impact - in the doctor’s office.  Using tools like digital waiting room screens, wi-fi mobile access, patient tablets and digital wallboards, patients have the advantage of having specific information available to them at just the right time - while they are discussing symptoms & treatment options. The average amount of time it takes a person to be accurately diagnosed with dysautonomia is 3 years, so it is imperative that as many physicians as possible be reached with the most up-to-date information about this frequently elusive and misunderstood condition.  To date, Outcome Health’s technology products are being used in 195K doctor offices, displaying during 500M patient visits annually.  

From Shradha Agarwal, President and Co-Founder of Outcome Health:

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“...our technology platform now give us the ability to not just create awareness of healthcare solutions, but take it one step further to activate patients into personalized solutions that deliver the best health outcome possible for them,”

In the coming months, DINET will be working hand in hand with all of their sponsors to extend awareness and education throughout the medical community and to help bring POTS & dysautonomia patients the resources & support needed to live life with chronic illness.

To learn more about our sponsors -

Banana Bag Oral Solutions - Exclusive coupon for DINET members - save on an electrolyte mix.  Go to www.bananabagdrink.com and enter the Promo Code DINET25 for a special savings of 25% off.  Throughout October, BananaBag will donate all profits from sales using this code to DINET in honor of Dysautonomia Awareness and DINET's work.

The Mighty - Visit The Mighty’s home page at https://themighty.com   For stories about dysautonomia - https://themighty.com/?s=dysautonomia   For stories about POTS - https://themighty.com/?s=POTS

 

Outcome Health - Visit the Outcome Health home page at www.outcomehealth.com  To hear about the impact they are having on patient awareness - visit http://www.outcomehealth.com/products/ and click on “see our impact”

Banana Bag Oral Solutions photos from the Choc Hospital, CA  "Connecting the dots between: EDS, POTS, Chronic Pain and Mast Cell Activation Disorder"

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DINET's Digital Wallboard (video) Screen from Outcome Health on left and patient tablet on right:

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Outcome Health's Mobile Patient Application

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Edited by edriscoll

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