BEE

Hang in There..you can get through it..Remember all the days that you spend sad and frustrated are days that are wasted that you couldv'e been happy.

I know that sounds silly but this stuff is SO tough to deal with at times I know personally like many others just take it one day at a time...

Dizz..I will PM you the answer

Might be a bit of neuropathy..

Just wanted to pipe in that I also had an ablation and was told I never should have had it..I had the AV node ablation for AVNRT(or what they thought was wrong) and Many docs have said it was probrably POTS back then.

Belinda

Kim...Big well wishes for college and healthy days ahead!!!

Good for you girl!!Belinda

High In AM then bottom out during the day...

Hey Jacquie..Long time no talk...do you have GI issues like gastroparesis if so this could be contributing to the nausea feelings...

They are NO fun sorry girl..

Jamie...Bless you girl. And the fact that you are fighting to stay working in the army...It takes a lot of willpower and courage to do what you are doing..and personally I am at the point where it doesn't matter if anyone knows what POTS is:except that it is hard every day on our lives..

One minute I am almostnormal the next dysfunctional..don't give up girl and keep your head up.

This forum is full of support and wonderful people..

Belinda

MMMmm..good point Michigan Jan I also quote that I was told the same thing by Grubb..as I am having a horrible time but like you said not all of us can take the antihistamines..I will be seeing an allergist pretty quickly..I am having a bugger of a time.

Thank you for reinforcing this into my brain I only take sinucleanse and nasonex which aren't doing justice

Belinda

yep feels like my breath is being taken from me..it also feels like I am hyperventilating even though I am not..just feels weird in general.

Sorry you are having to deal with this..

Dizzy your so silly..you and your thorny pooping.. ..You crack me up girlie..

Hey I definitely have an increase in symptoms right around now..I cannot breathe through my nose at all also or it feeels like it is full of something and my throat is definitely reacting from it..I am awfully tired as I am sure it is because my body is erleasing constant histamine..

No systemic drugs for me..the epi..makes me crazy.

Take care..hope you find some relief..Belinda

Nina..I was told that I have neuropathy of the throat..the mouth and throat stuff does stink!!

I wish oyu luck at the U of Penn.

Bee

Hey Lady...You are the bomb!!!Keep up the game plan..travel partner

Bee

Jacquie--I just wanted to say hi and I hope you start to feel better . Hopefully more good days start coming around for ya..Keep your head and spirits up even though it may be hard right now.

And call your doc

Belinda

Hi Holly..Welcome to the forum. This place is very supportive and helpful for many..especially when you are newly diagnosed. I know it helped me through some rtough times when I didn't know what the heck was wrong with me.

At any rate..glad you found the forum and sorry to hear about your POTS

But glad you have some supprt now..

Take care..Belinda

Okay I was a home health aide before nursing and if you are private pay some not all companys DO allow you to do just errands and cleaning for them.

If you are w illing to pay at least 15.00 an hr.

Bee

I jsut realized if I keep using all these different names you'all are gonna think I have split-personality disorder.. .LOL..missed all of you and your posts.

Belinda..Bee..Bowlingballhead

also try and see if there are home health agencies around????

I asked my autonic doc about this and confirmed it in a neuro. ( that is pots familiar) that it may be in my case small fiber neuropathy..and that it falls into place with POTS. First I was worried but was reassured it is common in pOTS patients and it is something to do with nerve impulses.

I AM NO DOC..

But be assured that I get it too, I sometimes feel like my limbs are all asleep when lying or sitting to long or crossing legs. And sometimes my hands,feet,and nose are cold.

Stinky and annoying but part of the package I guess..

Belinda

My test results were similar although I had mine done in a autonomic lab in Cleveland..I had reduced sweating and digestive issues. My bp just did fluctuations and did go somewhat low but stayed within the norm. My daignoses was POTS. So I am not a medical personnel but it sounds like it to me.I had a large increase in Heart rate like you..

Also, I had an ablation done in 2000 remember that it is irreversible and permanent. And some of the autonomic docs I have seen have said that I should have never have had that done..although that is not the case in everyone I am sure.This was done before they knew I had POTS.

I would just be a little more cautious and start with meds. if you can..

Good luck dear..Belinda

Thanks Couchgirl..You are the coolest!!! I am chugging along slow speed and sometimes at a standstill but eventually I start going again!!

Bee AKA :(Bowlingballkhead)

Hey Dayna..I hope everything turns out okay with your little guy and that they figure out the exacerbation of symptoms meanwhile I would look into the home thing and there may or may not be a connection..hopefully there is and you can get back to a better baseline.

I have heard of things like that too on my grandmothers street I think at least 6-10 people had cancer and one child died of leukemia all on the same street..

I was dicussing this with a natural herbal lady who happened to use to live on the street and now her mom has MS.

Sometimes I wonder..

At any rate I hope you get to the bottom of this and that you are okay..emotionally and physically you have so much to deal with right now..

Take care..Belinda

Me neither... I argued it for quite some time..

I too have this symptom..