willows

Hi, I've had A.N.D. ( as its called in UK) since I was about 15 years old. A first I did work but became so ill at 17 I had to go into hospital for months. I then got married had my three children and just ran the house and looked after the children as best I could. Divorced at 30 I then tried to run my own company , this was O.K. until my now ex hubby put everything onto my shoulders and it became to much and I got worse and worse. Now aged 50 ( 3 children, four step-children , 4 grandchildren) and unable to work at a normal job, BUT ................I discovered I had a gift for writing and am now on my second novel! Every afternoon when I go to bed to 're-boot' my body I spend half an hour on the lap-top working ......its feet up , head on a Y pillow, blanket over my knees , video on the telly and tap, tap, tap . This for me is heaven as I feel that my education has not gone to waste , I feel useful , funny really how such a little thing can have such a big effect on your life ! Some days I'm so ill I cant write a word , other days I do a bit more, its swings and roundabouts and I've learned just how much to push myself ................( cough, cough ) she says' ' she who overdid it last week-end and had to spend three days with her head in a bucket and unable to walk ' !!!! never learn will I Yes....I'm a comedy writer !!! Kind regards Willows.

Thank you all for your support it really does give me a boost. Just woken up from my afternoon sleep, I have to have a sleep every afternoon now or 'what comes around, goes around' and by tomorrow I would be in big trouble and not able to get out of bed ( how unusual) Tearose; I stated my menopause in Jan 2006, they have been testing me every three months for years as they where convinced the sweats was the change of life , given that I'd had a hysterectomy and lost an ovary. But all was 100% until Jan when I went not onto premenopausal......full menopause in three months, I was so ill I didn't know what, who or where I was , now on HRT and feeling better. Mom4cem; I have had raynaud's since I was about 10 also , sometimes when I go into the fridge , really quickly without my gloves ( slap my legs) just to get a carton of milk, well I'm sure you can guess! I end up dropping it with the pain. My nose goes very red then blue, and my Hubby ( also disabled ) who is a bit of a joker tells people 'its the gin' trouble is I'm te-total and most of my friends know it . Eric; I can feel for you , I was admitted into a psychiatric unit for assessment in my twenty's as they felt I was made! and I was given antidepressants ...........( yuck) soon flushed those down the drain ! No I'm not mad or insane.............just a bit crazy , but then I do feel that this is what Has kept me going all this time , my crazy sense of humour! When I've had a fall ( and there has been loads) I have to look on the funny side, I fell into a hole a couple of years ago and broke my ankle , the ambulance men couldnt believe my hubby and I as we where creased up when they arrived ! Well have you ever tried getting your wife out of a hole covered in cement ( hubby was cementing a deck pole in) when you are just as bad as she is pain wise??? Talk about the blind leading the blind Kind Regards to all............Willows XXX Here's what I take every day to survive; Frusemide . oxycodone . zopiclone . prochlorperazine . climaval . diazepam . mebeverine. clonidine . nortriptyline. domperidone . maxalt melts . metrocarbamol. transtec buprenorphine. Laxoberal . multivitamins. And I eat a very good diet of loads of fruit, veggies, water, wholemeal breads, pastas and lean meats & fish.

Hello I'm new here today , thank god I've found a forum that deals with my condition! I think I've had Autonomic Nerve Dysfunction since I was just 15 , the problem is that all those years ago I was treated like a silly school kid who wanted attention, when in fact I was in pain, sweating and passing out most of the time . I was first seen in London at the National Hospital in Queens Square when I was just 16 , they knew I was ill but just couldnt figure it out. Now at 50 years old I've been to **** and back with this condition. In England its not called by loads of different names just A.N.D. and I was only really diagnosed in 2003..........yes .....3 years ago after all those years of misdiagnosis. I now have the following problems to deal with each and every day ; Acute sweats at all times of the day or night, these have been going on before I started the menopause ( just to add more problems to the list ) I must have been sweating myself silly now for 10 years ! ( menopause 6 months ) if a dog barks , I eat food, smell food, drink, laughing , car back firing..........you name it and I sweat , not just a little moist mind you ! like a boxer who has done six rounds for a heavyweight fight , its horrendous to say the least and I soak everything and anything ! I have pain down the right side of my face including, eye, ear ( like pressure/running water) nose, teeth, jaw, chin, neck and glands. I have pain in my neck and shoulders which is so bad at times it makes me cry out when I move. I have lower back pain that gets so bad I cannot walk and it goes into my hips/legs/thighs. knees/ ankles and feet . My arms ,wrists and fingers are all swollen and so stiff I can no longer close them ( I do have arthritis as well) I get tumours 'popping up all over me' some the size of tennis balls others smaller ( 12 taken out at this time) I have night blindness and problems with blurred vision, plus two small tumours growing on my eyes. The headaches I get............... they are so bad when I lay down ( over the top of my head and down my face ) that I cannot stand the pain, yet ...........then I stand up they go 'instantly' !!! then I start to vomit and vomit and vomit ( how nice) I get chest pains ( like angina ) in which my heart beat drops to below 40 beats a minute and I go grey/blue and my oxygen level drops out. My heart beat is only average 50 normal now , but when I go to bed or lay down it lowers even more. if I get really stressed I can push it u to a whole 60 beats ( whoopee) I have problems with swallowing food at times , its like someone has there hands around my throat and are squeezing it so I choke . My intestines are the pits and I get contractions like childbirth, I have problems going to the loo ranging between diarrhoea to chronic constipation. I am also getting incontinent at times now. I dont sleep much because of the pain , so I am completely whacked all day long, fatigue is so bad that I feel like someone has pulled 'the plug' on me at times and I go white as a sheet and almost pass out. My blood pressure is so low all the time that I have to be careful I dont stand still for more than a minute or so or I'm liable to fall down ( embarrassing or what ) its abut 50/80 most days now. I have Raynaud's as well in my hands, feet and nose so going out in the winter is horrible and I suffer terrible pain from the cold. But I also cannot stand the heat and get short breathed and get really tired quickly .....so I cant win ! So have you any more symptoms to add ? Is this the lot for me ? I am getting worse each day as I get older, but will not give up! I take so many tablets I rattle , but still life is good, I have my children and my grandchild and even though I'm disabled I'm a crazy granny. I'd love to hear from anyone who has the same sort of problems as myself and will reply to all...............I'm a writer by trade so this is an enjoyment for me. Love to all and keep smiling ..............Willows