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bren22

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About bren22

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    Female
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    ottawa, Canada
  1. I had an open muscle biopsy. Why are you having one? After I had mine, my PCP (who was not involved in the muscle biopsy prior to the procedure) asked why I didn't have a needle biopsy. He thought that you can get the same results with less pain and recovery. As for the biopsy, you definitely don't want to drive after. I felt very shaky after. Basically the doctor freezes the outer layers of skin/etc but the actual muscle is not frozen. The harvesting of the muscle tissue is quite painful. I could walk after but will significant pain and limp. As I recall, it took weeks, maybe even mo
  2. Hi Dustin Can you tell me what kind of testing you had done? So far, all the testing that is done in Canada (at least as far as I know) is the tilt table. This has not given me very much information regarding treatment etc so I am looking for any alternative routes/tests that can give my doctors direction. Thanks Bren
  3. Has anyone been diagnosed with Addison's disease? I read a newspaper article and it seem to be me. I have Hashimoto's thyroiditis which I am being treat for. I don't think that my med levels are right as of yet. I had one bad cortisol test (1/3 of the low end of normal). My next test was normal. Can the levels fluctuate like that? Or is a mistake at the lab more likely? I have been gaining weight. I am absolutely exhausted. I have been more dizzy than normal. I am craving salt like crazy and am so thirsty. My blood glucose levels seem normal. Any ideas?
  4. I have heard so many negative things about Lyrica that I have always refused to take it. My PCP is against it. However, I have a neurologist who is a sleep specialist and he is pushing for me to change my mind. I tried gabapentin (a related drug - generic lyrica) and it kept me awake rather than helping me sleep. The neurologist says that reports of negative effects for Lyrica happened when the drug first came out and the only dosage available was 75 mg. He wants me to take 25mg. What dosages that people been taking and what effects, good and bad, have you experienced? My PCP is out of the cou
  5. I believe that it is possible that the fludocortisone could make you feel worse. I spent 6 months on florinef and midodrine along with a beta blocker and as my bp went up (even though only a bit and was still technically low) I felt worse. I had terrible episodes of shortness of breath (along with other things) in which I could hardly talk. My cardiologist discounted my symptoms. But once I stopped the meds and my bp returned to its usual very low normal, I felt better. My advice is to start at the lowest dose possible and tell your doctor immediately if you have problems. Good luck
  6. MaryMalta, You always make my day as you are a delightful person also!!! Thanks for your kind words I hope and pray all our sufferings go away. I know there is a reason we are all here and a reason we have all been touching each others lives. Without Pots all of us would have never met. I try to pull all of the good things of of all of this and remember that I'm not alone with sweet people like you Mary. Thanks again for your continued support. xxx's Bellamia~ Can I ask the name of the doctor? I live in Canada and have seen many specialists but no one knows what to do with me. I am currentl
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