mom4cem

HI,

Sorry to hear you are dealing with the high rate. Welcome though to the group!

I bounce around alot with my pulse and blood pressure. Much of the time I am in the 80-90's resting but getting up it increases and I certainly have the increase when I wake up in the a.m., I even posted about that before. The highest I think I have caught my rate has been 140-145. I have to say that that keeping the fluids up is important. I don't always keep up with it and I can tell the difference. Just the past day I have increased the water intake and I have felt better, has kept the heartrate pretty normal, for me that is. Even my b/p has been better. I used to always be low, over the past year my blood pressure has gone up a bit, then goes back down, but I noticed that an increase in water has acutally helped it to go back to normal.

I take tenormin(atenolol) a beta blocker for the rate. I have used it off and on for a few years and lately it has been more on than off and have not had any neg. effects from it except fatigue if I take more than usual.

Hope some of what we all post puts you in the right direction.

Good luck and I bet the flight will go just fine for you. Hope you have your list of questions ready!

Well, if that's the case my children and hubby will be thrilled if I stop singing!!! Hmmm,they have said it hurts their ears, guess it is finally getting to me..lol.

Thanks for the support,,it really threw me, I felt dizzy at times, this one just felt a little different. Variety, that's one thing this syndrome business certainly has. Keeps you guessing.

Thanks!

I was happily driving along singing away when I felt like my eyes were crossing and I was getting dizzy. Nothing blurry or anything like that, but I felt like I would get very dizzy but then it went away, lasted only a few seconds and of course my heart started to race, would not be complete without that starting. I do have sinus problems/allergies. It scared me enough to turn around and go home. Here I sit wondering and shivering if this is the beginning of the end of something terrible. Dramatic I know, but it scared me. Weather here is still rainy and yucky and my nose/sinuses have been stuffy but it just got me so down.

I really felt like this could be a good day today and BAM.

I have to get myself together and go to work soon. Worrying about this possibly happening again will, unfortunately consume me today.

Sorry to complain,I've been doing too much of that lately. Thank you all

Hi Nina,

Sorry I can't offer much help in this area. You've been to see a cardio before? Have you access to your records? I'd imagine this ep would want to run some of his own tests. Having my license pulled would be hard for me also. I do everything, and have to drive!... It seems like your pleas fell on deaf ears, once they think one way, it is hard to change their minds. Hopefully this ep will listen with open ears.

Maybe he will perform his own tilt test to see how you respond.

I know this was not much help,,but I really do support you and hope this all works out well for you!!

Welcome Gittel,

I am also pretty new here, not diagnosed with POTS per se, but with Dysautonomia, I have most of the symptoms that are listed and it is tough finding someone to treat this syndrome! Have your Dr.s come up with a treatment plan for you?

This is a great site full of supportive people who give support, lend ideas/suggestions, are just plain there when you need them. Welcome again.

Hi Ling,

I can't say mine is with headaches but I do get the intense pressure in my head, feeling like it will burst. That goes along with when I am getting an episode and it usually includes other symptoms with it. I feel like the pressure will pop out my eyes , I think it is for me that is, my b/p going up, I could be wrong. Or maybe it is just the vessels constricting for whatever reason to much adrenaline, not enough, who knows.

Agression with it I don't have either, not that I noticed. I'm more scared during those attacks than anything else and keep to myself and try to find a safe place to ride the worst of it out.

Amazing, half if not more of what I feel during an attack, episode or spell,(I call it either one each time to keep it interesting.. ) has just been described in this post. I also can have them a few times a day or once a day every few days, this past one has been around a few days. I wonder how much weather has an influence on it?

Hi JLB,

I do wake at times with my mind racing. I have also been having very vivid dreams lately, not scarey but very clear. Now sleeping has issues,,what next!

Hope you are doing well.

I have ringing in my ears also, but it is off and on, very annoying.

I'm relatively new to having these types of problems though Ive had dysautonomia for years it was pretty mild. Just over the past few days I have been having this. Whenever I open my eyes my heart is beating fast. Not very high, but probably high 90s of maybe low 100's. I feel like the adrenaline won't kick down the last notch the chills and all that fun stuff. Also feels a little like I can't take deep breaths in, though I can. Oh, I enjoyed the last 2 1/2 weeks of relative "normal" and now it's kicked back in ever since the episode the other day. Oh yes, and running to the bathroom, will have to have a direct line from me to the bathroom soon..lol. Have to get up during the night also,,annoying.

How long do your "storms" last. Anyone have this and any idea on calming this? If I take any more beta blocker I won't get out of bed

when of these spells hit. I was out shopping with my daughter and a friend after in the late afternoon, while in the store I could feel the pressure in my neck and head. Kept shopping and went home and right back out to meet my hubby and the rest of the kids to grab a bite to eat. All the way to the restuarant I had the pressure feeling in my head and behind my eyes, tight everywhere. I did not want to let it control me so I kept going, sat down and ordered. My pulse gradually got fast but not as fast as usual,(I assume to the fact that I have been taking the beta blocker in the a.m. and p.m.). I'm sure my b/p was up and my heartrate was going up and down the best I could tell.

After an hour or so it calmed down, with little hits of it for the rest of the night...I was just so dissapointed, I had a stretch of about 15 days without that type of episode and thought maybe, just maybe it would stay away. No such luck!! Of course the night was not filled with restfull sleep and this a.m. I am fighting the feeling of dread and leftover adrenaline.

I feel bad, many here suffer much worse with their POTS, and here I go whining and feeling bad for myself with my "don't know what type of dysautonomia I have..blues").

The day is filled with lots of running around with the kids so it's time to pull myself together and shake it off!!

Thanks for listening or rather for reading the rambling!

Enjoy the freedom, and glad to see you got right out there as soon as you got it!

By the time I finish writing this you are probably done. Hope all went well. I worked in a ob/gyn office for over 10 years,,dreaded when it was time for my check-up and still do!!!

Hi,

I've been thinking about that myself. I also have "episodes" where I feel funny and then I notice my heart is beating faster, then I feel like my head is full, can tell my blood pressure is going up, get the chills and shakes and who knows what other symptom may jump on for the ride. This usually lasts about an hour for me but I feel like garbarge for the rest of the day and usually a day or two after. These are when I feel like I am at my worst, and day to day is usually a mixture of all other different symptoms just not magnified like an episode. Did that make any sense?

The tachy drives me crazy,,if I am not careful I'll live in fear wondering when the next one will be.

Hi Linda,

Welcome to the forum. I am still pretty new around here also. I have some form of dysautonomia, don't know where exactly I fit in, but I have found everyone here very supportive and understanding.

Welcome!

I am so sorry Morgan, I hope he is doing better now. I ditto what everyone else says, especially if you or another family member can note his treatment care with an advocate. Everyone should be treated with respect and truthfulness. Keeping you and yours in my thoughts.

Hi Susie,

I hope you are doing better. My fingers are crossed that the episode was just a POTS episode. Hang in there!! ((hugs))

Oh, I am so sorry about your little girl. Have one myself and can't begin to imagine what you are going through.

Thinking of you and your family.

I'm still pretty new here and trying to figure out what's going on so sorry if I am late in sending you wishes!

Wishing you well for your surgery and a quick, speedy recovery!!!

Cute site!

Wow, that is great! Very inspirational. Feel my hand patting you on the back, that certainly is a long road with school and having pots and everything else to boot!

Congrats and ride high!!!

Hi Dino and welcome!

Teeth pulling, not the way to go. Have thought about that myself as I have a front tooth that has a short root which is eroding. I've beent told that was due from having braces done at any early age and it somehow damaged the root..Yippe, now I still have some crooked teeth and have now to look forward to the day I have a mouth full of missing teeth like my children!!

Biotene is good and keep doing the best you can with flossing. My dentist recommends me to use the colgate total, he says he finds that works the longest with keeping plaque to a minimum overnite.

Stay well and keep smiling,,(I know, not funny)

Prayers for you and your family. Please, as difficult as it is, I ditto what others have said, remember to take care of yourself during this stressful time!!!

Wow Linda,,hope you get better very soon. Glad to hear you rescheduled your test..and yeah!! to being able to swallow..I hate that feeling when you it hurts so much to swallow. Sleep and fluids the best you can do to help get over this. Would not be any wonder that the pots is acting up.

((hugs))