potsiebarbie

This is probably my third ER visit in the past two weeks, and the first time they have decided to check my Magnesium which the doctor said is severely low. I'm about to get some via iv and he is making sure I follow up with nephrologist and endocrinologist. Me being the anxious wreck that I am, I am a wee bit concerned. Any ideas on what could cause it besides diet? 

1 hour ago, Derek1987 said:

Honestly I only drink coffee to get a boost. No matter the flavor or whatever. I'm a coffee rookie, BUT since September after my 3rd faint spell, I can't tolerate much caffeine anymore. It makes me feel sick and shake. Even too large of a Coke will have me messed up. I found this out by drinking a large Coke from McDonald's. I was so sick I missed one of my doctor's appointments. Then I tested the waters again, same result. Boo.

I feel for you. I can only do one cup a day. I used to drink it all day long. If I did that now I'd die. Lol 

Funny thing is we have a dish washer, but don't use it. We found that we had it clean the dishes before or after anyways. 

I just bought a pour over because I've heard such great things about it. I'm definitely going to try that homemade syrup recipe. Sounds amazing! What brand coffee do you drink? 

Yup! I want to get a stool specifically for doing dishes. 

On 10/7/2018 at 2:24 PM, peachychou123 said:

If I eat anything spicy, I get skipped beats. Recently I get shivery and shaky before BMs. I have bad reflux and my pots started around the same time I developed a hiatus hernia. I have hiccups a lot and wonder if it's from my diaphragm being irritated by my hiatal hernia. There's definitely a vasovagal link with many dysautonomia issues, and the GI tract is often involved.

Same with the hernia and pots! Have you thought of having yours repaired?

I don't have any advice, but I have been struggling for a similar amount of time and haven't been able to go back to work. Yet! I'm still holding out hope. Good luck!

I second csf leak. I think they can test fluid that comes out of ear or nose. Was it a one time thing so far? Any other symptoms?

1 hour ago, Outaker said:

yes my lungs are clear I have had a full body ct. You are safe dont worry. 

That does make me feel a little better! Shortness of breath and the weird heart stuff are my most bothersome worrisome symptoms. I swear one my heart has no idea what it's doing. My hr fluctuates wildly. Hooked up to the monitor it showed quite a few pvcs too. But they didn't think it was anything fascinating. Lol

Well two questions actually. One, is sinus Tachycardia and Tachycardia the same thing? Two, does anybody have a hard time getting rid of their tachy sometimes (ie not relieved by simply sitting down). I was in the ER for about 3 hours and my heartrate didn't go under 100. It can be pretty stubborn. And extremely finnicky as sometimes (mostly in the evenings/night) I'm bradycardic.

49 minutes ago, Outaker said:

Echo cardiogram / Stress test / EKG X10  CT Scan / Xray 

Did everything come back normal? Have you ever had your lungs looked at?

5 minutes ago, Outaker said:

Yeah they dont care about the RBBB cant figure out the pots 

Interesting. What all did you have done with cardio. I saw a cardio last year, but the rbbb is new.

6 minutes ago, Outaker said:

Any news on this? I have Incomplete RBBB as well and hyper pots i think. 

Did you see cardio yet?

8 minutes ago, Lily said:

I have incomplete RBBB.  Mine was determined to be a variation of normal.  This is more likely to be the case for RBBB than for LBBB.  The cardiologist will check for indications that it is dangerous.

Do you have any symptoms from it? Was it an incidental finding? 

19 minutes ago, MeganMN said:

Eek! That would not be expected at all! How old are you? Any heart history? 

27 I have pots. And last year I had echo stress test etc that I was told were good. I did find out last year that I have a murmur. 

Anybody have this?! I just had an EKG in ER and they told me not to do any exercise and to follow up with cardio. Scared! 

For coffee drinkers, what's your favorite way to have it?

I'm sitting here drinking my eight o'clock coffee with milk in it feeling like I could use a change! 

I used to. Honestly we had a really hard time keeping them alive on three different occasions. And I have no idea why. We reaearched endlessly. Seriously. We didn't go into this like oh let's put a fish in a bowl of water. We really worked hard. Any fish 101 advice? I'd really love to have fish again, but I'd hate to be responsible for their demise. 

3 hours ago, MeganMN said:

@potsiebarbie sorry- my medical brain at work again. I get early beats that cause a big Thump and breathless feeling. What happens is that the beat happens early and then there is a pause before the next beat. Mine have been getting weirder though. Instead of the top part of the heart contracting and then the bottom, I get these weird beats where the top contracts and the bottom doesn't so I feel icky.  Hope that you can get in to see the Cardiologist sooner than later!  

I have to take a decent breath when it happens. It feels weird. I get it alot with standing up and position changes. Sometimes it will happen while I'm doing nothing. I hate it. It feels like it's my heart's first day on the job and it doesn't know what it's doing. That's cool that you know what's actually going on with yours. Any treatment? Is it dangerous? 

On 1/9/2019 at 12:32 PM, FileTrekker said:

I know, it’s really hard. I struggle with it myself and I’m the one saying not to worry about it lol.

If you want, check out some of these videos from Dr. Sanjay Gupta, he’s a very good cardiologist from York here in the UK and he explains it very well and I find his videos very comforting and reassuring when I’m feeling worried.

 

Knowledge is power. I liked this video and watched a couple others. I did get a little reassurance from this. I feel like if doctors took the time to thoroughly explain things and "educate" us instead of just saying "you're fine, it's 'normal', lots of people have this, etc.." then we would do alot better in general. 

28 minutes ago, MeganMN said:

@potsiebarbie what did your doctor think? I have done some digging because I have had some recent episodes of dizziness with a slow rate and figured out that my 'normal' bigeminal (every other) Premature Atrial beats are non-conducted, which is making my intrinsic rate about 36-40! Eek! Wondering what ended up happening with you.

What does all that mean? My doc just referred me to cardio. It hasn't gone thru yet. 

What's the most "natural" way to get in those electrolytes? Does anybody have any recipes for homemade electrolyte drinks? Don't get me wrong, I love me some Gatorade and Powerade, but I could do without the sugar and junk. 

On 1/4/2019 at 8:04 PM, Jessica_ said:

You aren’t babbling and even if you were I wouldnt care because it’s nice to talk to people who actually understand what I’m going thru! I’m sure it’s from the epidural.. I just wonder what it did and if it’s harmful. I will for sure let you know what my neuro says (if anything) Lol 

Did you see your neuro yet?

I always have trouble balancing fluids and electrolytes. My sodium always comes out a little low despite salt loading. And when I haven't been salt loading and drinking a ton of water and I feel worse than usual- it's normal. So Idk. I don't understand any of it and just want to feel better!

Yes the ones on the side are pure torture. I get them in the "heart area" too. Those are unrelenting. I wish I had a good answer. They really worry me. Doctors just think I'm a big hypochondriac.