potsiebarbie

I followed up with my new cardiologist whom I've only see once before since my new EKG abnormality. He said the echo and 24 hr holter were "fine". He gave no details and I asked about my newly acquired EKG abnormality and he said he could barely read it on the EKG and it's not a big deal and to follow up in a year. The EKG abnormality is a incomplete right bundle branch block, by the way. And as far as I can tell it seems to come and go, or not get picked up. I guess I'm just having a hard time accepting it. I left the appt thinking to myself "no, I don't want it. No thanks. I do not accept" lol I'm like a kid who doesnt want to eat their veggies. IDK. Any advice, or experience to share? Anyone else go that long in between cardio visits? Anyone else with abnormal ekgs? 

Do you guys think pots can drain/use up your magnesium? Anybody have any problems/experience/thoughts on the matter? 

15 hours ago, JimL said:

Sounds neurological. Have you had neck issues at all?

I have undiagnosed neck issues. I'm having an unrelated (ENT) brain MRI tomorrow. I want one of my spine, but I don't see neuro for first time till may.

4 hours ago, toomanyproblems said:

Could be. I try to keep up with the supplements, but sometimes I get confused.

Have your levels ever been off in lab work?

Does anybody get muscle spasms in their arms? Not twitches, but hard painful tense spasms/contractions. 

I finally managed to get a neuro referral! A new rheumatologist I saw referred me due to some numbness that I get. I am hoping to get alot out of this appt. Unfortunately, I am one of those people who clam up in the doctors office and let them walk all over me. I really want that to change. I need answers out of this appt. Any advice? Tests I should ask for and how to go about asking? I get really bad random muscle spasms, cognitive stuff really off, numbness, etc... I'm hoping for a MRI of brain and spine, and maybe some nerve testing. I guess I need help in standing my ground and getting something useful at this appt. Sorry for blabbering! Thanks in advance. 

I was summoned for jury duty recently too! I requested to be excused, because I care for my special needs son full time and breast feed both my daughters. I don't feel like I get enough support from any of my docs to be able to be excused for medical reasons. So I can't offer any advice, but good luck! Oh and I too used to want to be picked. Lol 

I had a very similar experience with the last cardiologist I saw. So discouraging and disappointing. 

13 hours ago, MeganMN said:

I always seem to have Low Albumin and Low Protein.  

Do you know why? 

On 3/1/2019 at 8:46 AM, Derek1987 said:

Funny you say...I check my to see if my heart is still beating sometimes. I think it's out of paranoia because my heart doesn't act right. I feel a huge increase in beating just from moving to a different position in bed. Plus all of the palpitations. I basically worry I'm gonna die everyday. I start my new medicine regimen today so we will see how that goes.

I feel the same way! What's your new regimen?

So the way I did it is note the time on the jug after your first urine (that you don't collect). And pee anytime you have to up to that time tomorrow (including the next morning's urine). So to answer your question, yes. Lol Hopefully that makes sense. My brain fog and I are one in the same. 

50 minutes ago, JimL said:

Did you consult Dr Google? Mine were in normal range a few weeks ago. 

Of course. Lol I didn't find anything pleasant so I figured I'd see if there were any personal experiences. I find that Google likes to scare you and forums give more perspective. Lol

44 minutes ago, JimL said:

Yeah. Have you ever tried an ice pack on your upper neck/base of skull. Try it for a few minutes and see if that helps. 

No I haven't. I'm gonna give it a try!

3 hours ago, FileTrekker said:

Hmm. Yeah. Not 100% sure but I do get that. Almost like I've suddenly become very self aware of my breathing / heart and feel like I have to take over my own breathing or feel like I'm not breathing or something. Its hard to calm down after that and just let my breathing work on its own. I find myself concentrating it for a while afterward.

Yes! Kind of hyperaware. It feels awful. 

Yeah cause as far as I can tell BP, ox, and hr are all normalish. IDK. It's hard to describe. 

Anybody get a weird feeling like your heart is gonna stop or you are gonna stop breathing? I know it sounds weird, but it really bothers me. It comes and goes and other than that I pretty much feel like I'm on autopilot. I have constant unsettling derealization and depersonalization. Not getting much help from docs.

Just me? Lol

Anybody have similar findings and know why? The docs keep ignoring it and I can't help but think it's a piece to my puzzle. 

Thanks everybody! That makes me feel better. I didn't realize the monitors could be so funky.

10 hours ago, JimL said:

They should turn the sound off on those things. It's enough to trigger someone. 

Seriously! 

4 hours ago, FileTrekker said:

Weird.

Were you being transcutanously paced at the time?

"Pacer nt pacing" should not show up unless you were which would imply the monitoring equipment was funky.

 

Idk what that means, but I'm guessing yes. The doctor said just moving around can cause it to get all wacky. 

4 hours ago, JimL said:

When they can't figure it out, it's psychosomatic. 

I make it all up for fun. Lol Or I love paying for parking at the doctor's office. Haha

I used to be for years! More recently I took them occasionally up until about a month ago. Maybe my body needs time still? IDK. When I read about the association between the two I knew I couldn't take the ppi anymore. 

So my body gets a kick out off not hanging on to magnesium. Already this year I've been given iv mag 3 or 4 times in the ER. A nephrologist "loosely" diagnosed me with gitelman. I say loosely because she didn't do the genetic testing to confirm and has yet to do labs to help confirm. She did order labs, but doesn't want me to do them for another week or two. So anyway, I've been on loads of oral mag which isn't very helpful and I'm having extremely painful muscle spasms. Right not it's my arm and when I showed the ER doc she said it looks like Ive been lifting weights with one arm. Lol I guess I'm wondering if anybody has anything similar or any knowledge or anything in this regard. I have a few other wonky labs that lead me to think I have a malabsorbtion issue. I'm currently waiting to see a new PCP as my last just wanted to drown me with antidepressants. Sorry to ramble! 

While I was there 80-120ish range