Nash

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Hi All, I need help in understanding my condition. Post repeated UTI in 2013 I developed chronic pelvic pain, on and off burning pain in legs, hands, severe fatigue, severe acid-reflux, hypertension (150/110 without beta blocker 50 mg and telmisartan 40), hypersomnia. Fatigue is worsening and after shower especially hot shower I feel horribly fatigued, dizzy, lot of breathlessness (which leads to anxiety) and I fall asleep most of the times after shower. I sweat profusely. My blood pressure falls by about 20 pts from supine to standing position with increase in heart rate by 25 pts (measured within 3-4 minutes). Same thing happens after mild physical activity. I also have chest and upper back pain mostly on left side. I have been to several doctors (Neuro, Cardio and Rheumatologist) but they are clueless. Medical system in my country is not advanced enough to do antibody testing (alpha, beta or muscarinic receptors) for POTS and CFS or understand POTS or other rare condition. I don't know the type of POTS I have (neuropathic, hyperadrenergic or other subset), CFS without POTS or only mast cell activation syndrome or it is something different. Anyone having similar symptoms especially issues after taking shower please do reply. Request you to please help as I am struggling due to debilitating condition. Regards, Nash