AngelHelp

While this is an older thread, most of us still use the valuable info we find here on Dinet. I decided to share! I have tried all forms of magnesium in my battle against Dysautonomia, POTS, Ehler Danlos and Mast Cell Activation Syndrome. I recently found a company called Ancient Lakes, based out of Australia. There are independent vendors in the U.S, U.K and AUS, so shipping costs are affordable for most everyone. I use the magnesium infused salts (so convenient since I am on 17 grams of salt daily) and I also use their "magnesium bitterns". I simply put about 30 drops in my lemon water every morning. Another plus is that it can help with my occasional constipation, since I can just up my drops by a few and that gets things going again. I was diagnosed at 19 with POTS (I am 42 now) and for years I have been chronically deficient in Mg, and other minerals/vitamins due to gastroparesis. This past doctor visit was the first time that I had optimal levels of Mg! I also sleep better, I can tolerate the infused salt without vomiting and it also helps with my Mast Cell due to my histamine triggers. This is my personal experience, but I wanted to mention it for others going through the same things.

The IV is for "rescue medications" in the event of an adverse reaction and gives the team immediate access to treat you with meds that can be vital! At our hospital I work out, it is just generally used per hospital policy or on the ordering physicians standard orders. Definitely talk to your dr to request to opt out if you think it will help calm you. It was reassuring to me! I had my last TTT in November 2016, with an IV, but the team was great and brought up a NICU nurse to stick me. She got it on the second try, a record for me! I was tilted up for 10 minutes and had that awful feeling we get when we feel like we need to lie down, but they were not allowed to lay the table down (generally the parameters of your vitals are set by your doctor ahead of time on this, for example, if your HR went to 200, you get to lie down!). My test was still inconclusive at 10 mins, so I was then laid back down, my IV was flushed and checked and the nurse went to get my cardiologist, who was in the room while the drug injected to stress the heart was administered, I was tilted back up for 10 more minutes and allowed to lie down when I fainted. It wasn't nearly as bad as others I have had over 20 years, like some that caused vomiting (BE SURE YOU ARE NPO AFTER MIDNIGHT TO AVOID THAT!) Sometimes, a simple request to your doctor or nurse will allow you to avoid parts of the test that scare you. It is so worth having a clearer diagnosis, so just keep in mind that this test is giving more knowledge to your treatment team and knowledge is power! You can do this!!!!

I joined the Magnesium Advocacy Group on Facebook to learn more about how mag functions in the body. Due to my chronic dehydration and poor veins, I wanted to avoid a port. I found a Facebook profile called "Maggie Lister". Magnesium has completely stopped a lot of my symptoms and I have been able to reduce some of my salt intake. No leg cramps anymore! I also stopped processed foods (normally we are told to eat salty chips and ramen noodles and sugary Gatorade drinks), but this ends up adding to our toxin overload and aggravates gastro symptoms. It is a great start to learn the role of supplements and choosing the best ones. You can also go to gotmag website and read Morley Robbins posts. Hope this helps! Another resource for diet changes that helped me after I developed drug induced (beta-blocker induced psoriasis) was the blog named psoriasisdiary. I wish I had known then what I know now! (2 years clear of psoriasis and working full-time!)