Suthrngal

Ashley...me too. Shoulder blades and neck seize up. Is anyone finding a trigger?

Janet...is this vibrating actually small fiber neuropathy or are you thinking it separate? No doc even mentioned neuropathy during my week long mayo visit. I'm not sure I understand it really. Also how do you think. dr goodman will test you for MCAS? Praying you get total restoration before your FEB appt.

Alex, so when you take a beta...it calms down the "nerves" vibrating current? I feel like mine started after I stopped taking atenolol (for 5days). i could be wrong but the timing is right.

Saw dr cascino neurologist. Did no testing. Dr mulpuru cardiologist. All these at mayo mn. I went for the "current" feeling and tremor and got no real answers other than it can be Central Sensitization which I am thinking is a arch all much like fibro is thrown around rather than finding out what causes it sudden inset. Wondering now about MCAS and some sort of neuropathy. Can not discern what is causing it to be worse at times although it never goes away, since April. I even feel it in my feet.

Psalm ...ur pots doc is a neurologist? Ill have to look at the neurologists name....I asked him about the vibrating and tremor and he said, "it's not als". Ur ok. The cardiologist was great and dx pots but no idea about this vibrating current and sudden onset tiny tremor.

Yes! Doctors at MAYO said the pain COULD be related to POTS if it were an electrolite imbalance issue. POTS explains almost all f my symptoms but not this severe myofascial syndrome. I don't want to just treat with muscle relaxants because sometimes its not seizing up! I want to fix the problem rather than mask the symptom.

QSART test? Is this one MAYO does?

Also MTHFR and b12 drainer. Hmmmmm.

How do most heal this neuropathy that feels like a "electric current" as mentioned in the link provided above? Mine was sudden onset.

After delivery. Thinking it was the bfing and dehydration..... I was preg before but no bfing.

Doctor order Genova's NutraEval.

A recent nutraeval test showed that I was severely deficient in coq12 wondering if any of you have taken this? I have read that it can lower blood pressure my blood pressure is already low so just wondering if anybody had any luck with this? As always thanks for your time in responding

Tha

Which muscle relaxant did you try?

Jackie keep us updated plz. And which doc did you see at MAYO and which clinic.

Psalm, I'd Dr Goodman your POTS doc at MAYO?

My muscles started seizing up in my back and neck since the POTS symptoms started 6 years ago. Wondering if this is common? Prior to 6 years ago, I had no tight muscles (except neck when sinus headaches accompanied), no heart race, no dizziness, no gastro symptoms and no chemical sensitivities and no MSG allergy. All started at once. Most can be remedied with salt tabs and lots of fluids. The muscles that seize up are a problem.

Psalm 23...when is your mayo appt? Keep me updated.

Wondering if these nerve firing and pins and needles in feet are a form of neuropathy. I can not find info on it. I have POTS (6 years) and these symptoms strted in April. Also tiny spasms in my legs (bad stuff ruled out). Ideas?

Alex, me me know if the buzzing stops after the propranolol. Do you get pins and needles in feet too? Like a current going thru legs? I don't know of atenolol made this happen. Happened at the same time. He suggested lyrica, neurotin and two more. I react to so much I am so very hesitant to take medication.

I have this too since April. I ThInK it started after taking a beta blocker for five days although I am not exactly sure. I also now get fasiculations in the legs mostly. The vibrating current is how I described it. I went to MAYO for this current (and also tiny spasms and pins and needle feeling in feet) and the neurologist said just be happy its not something serious. He was well meaning, he basically by looming at me somehow ruled out the "bad stuff". He agreed that I had Central Sensitization along with POTS and they were overactive nerves. Not sure if I want to take a medicine to cover up what another medicine caused. I feel like my legs and hands are vibrating. There is even a tiny tremor. Please keep me posted on what you all find out as this is NOW my most frustrating symptom.

Wondering if MCAS would explain this? And what type of doc diagnoses this?

Thanks so much. Are the main prescriptions for this gastro crom and atarax?

Neurotin was prescribed to him for which symptom? So sorry for his struggles.

What are the typical treatments for mcas?