Allotmenteer

Have just had another shaking attack. Had suspected I might suddenly be allergic tomtomatoes after a bite of one made my pulse race. Have avoided them for two weeks since, but tonight risked a home-made bolognese with tinned tomatoes. Within 20 minutes my pulse was racing, I felt the impending doom feeling, had to rush to the toilet, then my face startedvtingling. i was trembling all over, then the real shaking began, which lasted the usual 40 minutes. Felt pressure at backnof head and front of throat, was very thirsty, temp went down to 35.6. Coming out of it now, feel exhausted. i wish I knew what was going on. This is the same response I had to anbx (the trigger of all this) AND to a probiotic pill. Any ideas?

Dr Mathias at Queen's Square, my GP sent the referral letter, I haven't spoken to them myself?

Anyone seen the London neurologist? Am waiting for them to ring me back with a private appoinment, as I can't wait 8 months for the NHS feeling like this. Hope they ring back soon, it's been a week since GP wrote to them What can I expect at my appointment?

Lyme is definitely my trigger, too. Have subacute thyroiditis (for four years), which is caused by the thyroid cartilage being invaded by Lyme bacteria, I'm certain. Had two and a half years anbx, then LLMD refused to give me any more. Had to find a new LLMD which took a long time (UK has only one expensive private doctor that will treat chronic Lyme), while I went very much downhill. Started new abx in Dec, which gave me a nasty reaction 10 days in triggering Dysautonomia. If I could get rid of the Lyme, I'm sure the rest would resolve but i'm now hypersensitive to medication and can't take anything. Trapped! Waiting for an appt in London to confirm the Dysautonomia, don't actually know what to do next... Yes, my life was ruined when i caught Lyme from a biting deer fly at my allotment. Wish I'd never taken up gardening. :-((

Anyone else have this triple delight? Feeling like **** at the moment but still waiting for a neurology appt to come through.

I have that feeling too, not sure if it's adrenaline or cortisol or something else yet, but my attacks culminate in severe shaking too, and my temperature goes down to 35.5C. Doctors always say 'panic attack' but it's not as I feel VERY calm when it happens and am NEVER hyperventilating. It makes me so cross when they don't listen. Any explanations welcome.

Introducing myself! I have had Lyme Disease for nearly 8 years, 4 of those undiagnosed because of NHS ignorance. Struggling to get treatment and have had to fork out a fortune for private treatment. Then I got Subacute Thyroiditis from the Lyme, was told it would resolve in time. Still have a painful swollen thyroid 4 years on. Lyme doctor refused to give me any more antibiotics after two and a half years of fairly conservative treatment. Had a gap of 8 months trying to find a new Lyme doctor, going downhill all the time. Started new anbx in Dec with new Lyme doctor eventually, and after 10 days had a severe reaction to them, shaking uncontrollably. Over the next week or so, also started reacting to paracetamol, probiotic pills, and Evening Primrose supplement. Lyme doctor said it may be Dysautonomia as it is common in Lyme AND in thyroiditis. Spent Christmas feeling ghastly with just about every symptom on the list on this website, though not fainting. I think I may have Dysautonomia without any POTS. Also now have symptoms of Sjorgen's syndrome, to top it all. Have made private appt to see the London neurologist, as can't wait 8 months to see him with my Lyme continuing to get worse. I work full-time and am the breadwinner for the family so need a diagnosis soon. Gp had never heard of Dysautonomia. But my understanding is that if I can get back on anbx and attack the Lyme, the Thyroiditis and Dysautonomia will also resolve. So I need a route to de-sensitise my body so I can start taking medication again. Lyme dr says Immunotherapy to tackle allergies will help, but her quote for this is £3k for the first three months!! Anyone had anything similar? Want to get well but don't want to be bankrupt or waste money on treatment that doesn't work. The whole thing is ghastly! Allotmenteer