robert elrod

Oh so true tachyforover50. Almost nothing gets the tachy going like blue lights in the rear view. I failed the walk the line and eyes closed and touch your nose. I got so lucky he understood I had a balance problem. Think god I didn't have a bad brain fog day while reciting the alphabet. No more texting and driving for me especially since GA made it illegal. Lol

They say nothings funnier than real life,................... Another......The kids in the neighborhood have a rumor about the vampire that only comes out in the cool of the evening when the sun goes down and some even claim to have seen you....lol

I had the hida scan the gallbladder appeared healthy but once they started the injection of the drug I started having the strong pain. This was before my dx. After removal, pain was still there and my other symptoms intensefied. Not sure if related or i was just headed down this road either way. That is when I finally had to throw my hajds up in the air and take a extended medical leave.

Here's mine When you can not wait much longer to get off the couch to go to the bathroom, you hold off just a little longer so you can plan out everything you need to get before returning to the couch only to realize the remote for the tv and that large glass of water is almost laughing at you from the kitchen counter. You are so tired of pleading with your doctor for some type of compassion or empathy you just want to break up with him but he beats you to the punch and lets you know your just too complicated. When you feel the need to go where everbody knows your name, you hit up you pharmacy for a quick fix. You know all the bill collectors number by heart, you answer the phone as mr. Patel and mess with them for entertainment to break the boredom.

I have heard so many stories and know it is so hard to get DX. I never imagined after the dx the battle would start over. It has been a living nightmare for the last ten years. I can't give up again, it almost cost me my life when I gave up on the doctors. I know there's no cure and treatment is just supportive. If I can just get back to how i bad I was a year ago.I might be able to work again as hard as it was I still was able force myself to get up and at least make it to work. Even through that was all I did I don't even do that now.

Honestly I thought that dx was the finish line. I too have been down the anxiety diagnosis etc. I couldn't believe it myself when he told me I was too complicated and took too much of his time. What's sad is all he had to do was pick up the phone the specialist was going to tell him what needed to be done. I think he is mad because I told him what I had and he would not believe me and I was wrong. Then the specialists confirmed everything which made him more upset and told me how I couldn't have fibromyalgia and all that only women get pots etc.

Thanks to everyone who posted a response. I just lost track of this forum and it was rude to post and not follow up. I was discouraged and didn't keep up. I finally got through at vanderbilt and Georgia heart science this month and was refereed back to my GP. The specialist diagnosed hyperpots ,fibromyalgia , eds3 joint hypermobility ,Dysautonomia, ibs, gerd and told me they would work with my GP on coordinating treatment. I saw him yesterday, I was really hopeful as the specialist told me that some of the medicine I was on was a bad combination and the would help my GP come up with a better course of treatment. My GP decided to fire me as a patient instead with adjusting the treatment. He said I was to complicated for him to treat and I should find some one more experience. I reminded him that both medical schools said they would help him with the treatment plan and give advice, to that he said he doesn't have time to do that. I told him I had tried before and that no one local that I had called knew about it and the few that asked me to drop off some info never called back. With that he proceeded to leave my room.

It might just be me. Has anyone else gone through the despire of just not able to get help. When everything started I was told I was depressed and had anxiety. I wasn't so much untill countless trips to doctor after doctor and no help. Fast forward from misdiagnosis after misdiagnosis I finally understand what has been going on since day one. years later still cannot get help. The last test at the dysautonomic clinic turned out to confirm my suspicions of hyperpots/dysautonomia and likely eds3 plus a unknown heart condition that took my heart to 272bpm with 200/110. Again sent home without treatment. My local doctor even with info infront of him still said anxiety and he wouldn't treat for anything and said if they wanted to develope a treatment plan he would help oversee it but wasn't going to try anything related to treatment of dysautonomia just my anxiety. They wanted the local doctor to manage my problems. How does anyone get help. I realize that I live in a small town of doctors that dont care about helping. If they did I dont think I would have to fight so hard just to get help even after diagnosing myself and getting it confirmed by independant doctors. Is it just me or is it this hard for everyone to get help. At times it doesn't seem worth the effort. I guess because almost everything now takes so much effort even just standing walking, not to mention I had to go out on disability after twenty four years of working. I guess I'm just ranting I know others have a hard time too.