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About Albrown23

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  1. Just out of curiosity, what do some of you do for energy on days you need more of a kick? I'm a very busy nursing student and there are lots of days where I just need something to help me wake up. I already have a lot of fatigue from this stupid syndrome, so having a little more because I was up late doing clinical paperwork or studying for an exam not only keeps me from paying attention, but makes me far more symptomatic. So, this morning I had a coffee (I have a serious love for coffee and tea) but now I'm symptomatic. It obvIously makes my adrenaline surges worse. I'm lightheaded, getting d
  2. I voted that my weight stayed the same. I gained about 20 lbs in nursing school, but I'm attributing that to the stress of nursing school.
  3. I'm just wondering if anyone else ever has a similar issue. Sometimes when I am mildly symptomatic (like today) I will have a period where my legs shake whenever i try is bear any weight as though they are anout to buckle. It comes on suddenly and lasts anout an hour or two. I try switching positions and sitting down, but it continues. I can't exactly just lay down because I have two kids to look after, but even when I do my legs just feel weak. Right now I am sitting with my legs crossed (holding up my iPad so I can type) and my bottom leg is tingly, shaky, and feels like it is a out to give
  4. I can't really answer this. Mine is anywhere from 40-170. I put myself on a monitor at work a lot to watch the arrhythmia =P
  5. My bar came loose as well. It was only in for 4 months before the tie broke and it shifted to left. Actually, it was poking through my ribs and I had a painful lump that made me go to the ER.
  6. I was born with pectus excavatum and had it repaired in 2005. I'm not sure if my POTS is related to that or not. My lung capacity was only at 30% pre-op so I'm sure my heart paid a price too.
  7. I was on atenolol for about a month when I was 18 but it dropped my BP and made me pass out. I couldn't even walk from one room to another. I have a script for metoprolol in my wallet right now that my cardiologist said to fill at my own discretion. But, I'm afraid to start it because he said that my systolic pressure needs to be 140-150. So, if I take it I fear that it will drop my BP and I will get slammed with symptoms again.
  8. Omg...for the triggers I selected almost all of them. Great poll! You covered quite a bit!
  9. My asthma meds have been changed so many times because it makes my POTS worse which, in turn, makes me short of breath.
  10. Thanks everyone! I hate to say it, but I'm glad other people are in my shoes and I don't feel so crazy. This has been quite a nuisance, but I guess I've just learned to accept that I'm the weird person who can't do all the same things as everyone else, despite the fact that I really want to. I get lots of strange looks and eye rolling from people who think I'm just lazy or something. So far my biggest hurdle has been standing for longer than a few minutes in school and at work. There are lots of things I have to do at the bedside and I get very lightheaded sometimes. I am going to try using co
  11. Hi everyone! My name is Amanda and I was diagnosed with POTS last summer. I actually thought it was a BS diagnosis, especially after the doctor said I would likely grow out of it. So, I ignored it all and passed it off as me being lazy and deconditioned. It wasn't until last month when a different doctor asked how POTS was affecting my ADL's that I thought this might actually be a real thing. So, here I am! Here is my story.... When I was 9 years old I had my first episode of tachycardia. My mom called the doctor and I was in a few days later with a cardiologist, where he said I just had a mur
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