tachyfor50years

I would like to thank each one of you for your sincere concern and support.

Yes issie, you are right, it is very scary and traumatic.

Thanks all, you guys are wonderful.

Hi guys,

I just got home from the shelter, we were evacuated for 5 days, we still see the fire up on the mountains. I went through a very taugh time, our home is still there but it is a mess.

Words cannot express the heartfelt gratitude I have for those who are working day and night to keep us safe from the fire and support our needs in the after math.

I am so confused, so sad and the bag that I packed, half of is my medications!

I don't have a lap top or a smart phone, so it will take a while until you will hear from me.

Right now I have migriane, back pain, severe shoulder pain, shortness of breath and ready to throw up.

When I am under a stress like this, forget about my brain!

Oh no, I should not have posted this here but on the out of the ..., I am sorry

Talk to you my friends soon, I have to leave now.

Tell you the truth, the first time I saw him was in 2007, when I told him I have POTS, he had no clue whatsoever and then after 4 years, my PCP insisted to see him again, since he had had some new training.

All he did was change or add meds without any further tests (because their focus is on arrythmia not Dysautonomia).

HyperPOTS8,

I have been there 3 times, saw Dr. Sauer, but they have no equipments to do the tests for POTS like the other Autonomic clinics (Mayo, Vanderbuilt...).

Nice! Thanks.

For me, I suffer from low blood sugar mostly in the mornings and I always feel better when I am loaded with sugar, I get headache when I consume less sugars.

Add me to your list!

I have noticed that whenever I travel (specially by air), I get irritated over the littlest things.

Bless his heart, he wrote this poem to his wife Barbara.

http://utnews.utoledo.edu/wp-content/uploads/2010/08/webgrubbs-the-gaze-poem2.jpg

He has written a book under the title “The Calling” a book published by the University of Toledo Press. His book is a collection of several short stories detailing personal interactions between Grubb and his patients.

kjmom,

Does she have this syndrome's symptoms?

Here is a study which was published recently:

http://ard.bmj.com/c...011-201009.full

McBlonde,

You made me sad and laugh at the same time!

Sad, because you reminded me of my PCP and and most of my other doctors.

Funny, when you were about to ask him about Google!

I suggest 3 colors!

Yallow for pale.

Red for blood pooling

Gray for mental fog!

Corina,

My wish is not (and never will be) about more people geting our condition, it is only about publicity and awareness for the current Dysautonomia patients.

I am glad that you have a thoughtful cardio.

Hi everyone,

I hope one day POT will become a recognized condition that when we go to doctors offices, we will see brochures on Dysautonomia, like all the other conditions.

Just a wish!

Rich,

It is a pleasure for me to share knowledge with others, thanks.

rama,

You are so knowledgeable, I just wonder what is your educational background!

Here is a link to that study you mentioned:

http://jap.physiology.org/content/85/3/1113.full.pdf

You are welcome Kim. I have vision problems too (many different things).

You are welcome songcanary!

Rama, You are right. I just wonder if there is a test that can detect impaired cerebral autoregulation.

(During tilt testing it is common to observe that some patients tolerate very low values of blood pressure without symptoms, while others experience syncope with moderate hypotension or bradycardia. In rare cases syncope also occurs in the absence of significant modifications of blood pressure and heart rate. These different pictures are probably the expression of an active contribution of cerebral autoregulation in the genesis of syncope. More difficult to understand is the mechanism triggering such an increase in cerebral vascular resistance).

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1860656/

I think this will explain all my unpleasant symptoms even when my HR & BP are almost normal.

http://www.dailymail...o=feeds-newsxml

Is this and (cardiac syndrome X) the same?

Katybug,

You are wellcome and good luck with your appointment. Please let us know.