tachyfor50years

Issie,

I clicked on the link, it said:

Sorry 'george-ebay-research.com' does not exist or is not available.

No Kimbellgirl I am not.

Years a go I was on the Beta Blocker (Inderal) for more than 20 years, but now I am on Atenalol (10 Mg).

I forgot to mention that no matter what I eat, I get tachycardia afterwords specially in the mornings (light breakfast).

Thanks for your reply.

I have been suffering from this all my life and for some reason at times it gets really bad; I feel almost like my airway tightens up and I need more air. I try to catch my breath in between bites (I don’t mean rapid breathing) in addition to difficulty swallowing.

I experience the same exact thing during showers and washing my face.

Potsyturvey,

I really know what you are talking about, mine though happens close to my ears or neck and it is more like thumping; ( A bit like a buttefly is trapped in the back of my head and sensation of vibrating feeling) and once it starts, it lasts for hours.It seems to come on suddenly with no prior warning or associated symptoms.

I am just like you, would like to know about this strange phenomena!

houswoea,

I did not tolerate Gabapentin in the past and I think it is orignally prescriped for seizures in people who have epilepsy.

Do you take it regularley? or just when you have chest pain?

[if it's a side effect, why isn't the pain consistent - mine changes in intensity, location, severity, duration, frequency quite often.] Alex

Same question here!

I am still waiting for a blessing guides me to some releif of this awful unpredictable chest pain.

Thank you all for your replies.

No matter what number my Potassium is, I always need to take some and I am aware of the importance of electrolytes balance. I now take a prescribed supplement daily and also magnesium. In one of my trips to the ER,I was given two very large pills of Potassium, the Dr said that they will take care of my chest pain and fast heart rate!

It is true that low potassium corresponds with chest tightness and increased palpitations but as you know our problem is much deeper than that.

Thank you firewatcher for this artical, I found my an answer for my question about Dr. Ahern in California.

Did they say (500,000 people in the United States) having POTS? I thought that we are more!

Dear issie,

I am really sorry and I can relate, trust me, my first passing out was 50 years a

go when I was only 4 years old, and for your knowledge the one who found

the right diagnose was ME! (I have been reading and searching about POTS

since year 2000 online and books plus medical journals) yes I told my EP that

I am tired of all the EKGs and pulse been taken only in a supine position, I

asked him to ask the nurse to take my pulse during different positions, he did

but he was not happy! in fact he brushed me off to his partner who got retired

after few months, then I saw a new EP who was not interested at all in my

case, he only loved to do prosedures, he did not even perform my TTT, his PA

did. Long story short! due to living in a small city in midwest, there was no

other EP and I tried 3 neurologists but they did not have a clue! so I went to

the capital of my state which was not a good idea because the Ep there did

not even know what POTS is! so he referred me to that clinic in California

after I cried like never before, I told him here is a dead end for me! he must do

something about my case, I have been suffering in silence all my life.

For half a century I have been through a lot of pain, walked on the shoulders

of jiants but nobody knows about my daily sufferings, nobody in my family, no

one at work (Yes I work in a sitting position!) they all know that I am not

normal like them but they have no clue whatsoever, I don't blame them, EPs,

neurologists did not know about my condition, so why would I expect ordinary

people will understand more than those specialests?!

Thank you firewatcher for your valuble note about the thread.

Thank you guys for your responses to my question, I really appreciate your time and efforts.

I am still waiting for somebody to give me some impression about that clinic in California, which is the only choice for me because of my health insurance.

Thank you guys for your replies, I really appretiate your time and efforts.

No matter what, I will not go to the ER for chest pain any more! because all they do is a normal cardiac workup which takes hours and

usually comes back normal except for little abnormalities in CO2 and Potassium, give me sublingual Nitroglycerin which causes my heart rate to

jump to almost 185 to 200 in about 30 seconds plus leaving me with the worst Migrain.

My Question to you all is: Do any of you have the same problems with Nitro? or it was only me having a bad reaction to it?

I would really appreciate any of your input.

Hope you are all well.

I personally take nothing but since they have gotten worse, I am consedering taking a med for it. Somtimes they don't get better even when I lie down.

Thanks in advance.

I Don't know why my doctor referred me to there not to Mayo or Vanderbelt clinic

Same here Katybug! but for me regarding local or general anesthetics, very slow acting and extremely slow recovering.

Dear Katybug,
I really want to thank you for for your response and taking the time to reply to my question,I will take your awesome advice but it will be so hard to do because I have many many test results and never the same. I am still wondering if anybody here on this forum has been to Scripps Clinic In La Jolla.
Thank you again. All the best for you.

I am still waiting for an answer to my question, please help me if you have been there.

Hugs for all!

Thank you dear corina for your concern and support.

Hi every one!

I have a very sad and long story with POTS, It took the doctors 50 years to finally diagnose me, it all started when I was only 5 years old.

Just wondering if anyone has been to that clinic for treating POTS, I will see Dr.Thomas Ahern in early April of this year.

I will have to stay in the area for a week for possible testing.

Any tips or suggestions?

Any other details would be much appreciated.

Thanks for your responses in advance!