Monstrosity

I just talked to them and got some info. I woke up in a mood and had the Gastro Emptying test done so I'm a little off today. I got numbers as far as how much it would cost. I also asked about succession rates. The woman said they are 60% or better. I'm going to talk with my human resources department tomorrow to see what I need to do to get insurance to cover it.

Even if my insurance co wont cover it, if this program gets me %60 or better I'll be happy...

Daddysgirl I'm glad you posted a response.

I hate Bannanas I hope you step forward and give us some feedback as well.

If you still have them in a box and upopened they will take them back.

Issie

of course not... I put them all on and wore them. I will say though if these helped at all try the athletic Jobst. They are more like a tight cotton sock. If I have to wear a compression stalking these will be it.

gonna start myself since I'm ghostly white

just had one a few weeks ago, rough test to say the least...

I'm convinced as well... My small fiber seems better since I stopped wearing them 3 weeks ago... GRRRRRR... I've bought 10 pairs and they were not cheap...

You guys are making me want to go see him... I see Polston and he's been ok so far.

Dont give up on trying. Its so easy for people to give up in general and even easier for us with our syndrome. This round pots won next one you will. Your family will get over it. I'm sure they just want the best for you and dont want you to miss out. Keep your head up!

Thanks puppylove! He's ordering a bunch of blood tests and wants an x ray of my small intestine done. He said depending on that he will issue further tests including Gastroparesis.

http://youtu.be/YQpAYCzGAC8

I have an apt today and it seems I'm starting the day off rough... Lots of brain fog, off balance, cant find my journal (think its in my fiance's car) and I have an apt here in a few hrs. I dropped 30 some lbs from the end of December till around mid March. My weight has started to go back up and I'm eating more. I've never had an issue with eating until this winter. I've also noticed more acid reflux, and my tounge has been tingling and going numb from time to time. Any tests I should request? I've saw him in the past but its been a few years, I first want to know if he's familiar with Autonomic Dysfunction.

I was on it for a few months. At first it was great and helped. After a while I started getting bad tremors and stopped taking it. It was hard to come off of.

This was one of my first symptoms as well. I was taking Ambien to sleep and would try to stay awake on it. One night I started getting them and needless to say I stopped taking Ambien.

I wish I could go.... With the short notice I doubt I could get off work. I'm going to see what I can do though.

It can be very frustrating. Those people just dont know what its like to deal with something that cant be seen. I feel for ya. I wish I could give you some advice but just like this disorder varies from person to person so does dealing with people in your life. As far as the drinking and night life goes I was fortunate/unfortunate to have had plenty of that. For the most part all that ever did was lead to bad choices and problems.

I dont have my Doctorate but I feel like myself along with many on the site have at least a BA in Dysautonomia. I'd say your on the right track. Can you have a Tilt Table Test and other Autonomic testing done?

Gatorade all the way!!! I drink 2-4 24oz a day along with as much water as possible! I do like the purple Powerade as well. Gatorade has more salt in it than Powerade by the way.

As far as whats made it worse, Raman Noodles! Granted I vomited a few months back after eating them.

I'm with Potluck I dont want to give you bad advice, but here's what I do. I push and push and when I feel the presyncope hitting hard I sit or lie down for a few. My cardiologist told me exercise and movement is how I will beat this. I've never passed out and never used a wheelchair or walker. As others stated do whatever makes you feel the most comfortable. I'm too stubborn when it comes to help at times and have a very hard time accepting limitations.

It was very bright out today and I had just taken my sunglasses. Anyways this is one of my favorite places to eat!!!

East Sunday we celebrated my uncles kids birthday.

Nice work! I didnt click a treatment but resting/laying down helps. Also Singulair helps some.

Checked mine earlier and standing up not doing anything it was 109. For "us" I dont know what normal is...

Thanks to all that posted and those that PM'd me! I called my Neuro and the nurse called back and said the Doc didnt feel I have it...

I'm not flexible, but both elbows "used" to hyper extend slightly. My right one was broken for 3+ years before I got it fixed. (I dont ever remeber breaking it). I was told over and over again that it was Tennis elbow... I can go into more details but you get the point. I'm seeing my other family Doc next week. She's listens great and will either refer me to a doc or if its a specific lab test she will have it ran.

I recently was tested for Autoimmune but all the levels were good except one. My Neuro said he's not worried about it. I'll check my records and post what it was.

Here it is:

MPA IgM, Serum 39 53 - 334 mg/dL L

Last week my Allergist ran a test for Mast Cell. Its a small local practice and he said it takes a few weeks to get the results back. So I'm patiently waiting...

I dont know how I want to answer the Poll. I was told by UH that my case was in an advanced state. At the clinic they wont give me a ratting or any real thoughts on it. I think its bad but its due to I deal with it day after day.

Bowser on the prowl for a mate... He's always acting goofy during matting season.