Monstrosity

Glad your getting away from it all. I think everyone on here deserves a vacation! Prayers sent

Buzzing, tingling, cramping, shocking and crawling are all strange, but neurological symptoms for me.

I need to buy my better half some new perfume. She uses some cheap Bath and Bodyworks spray that sets my system off... I read that something more lavender scented is the way to go. Smells are a major trigger for me so I figure I need to buy her some new stuff prior to throwing it out. I dont care about the cost I just need to be able to tolerate it.

As far as water goes it is not an option you need it period. I drink 1/2 to 1 gallon of water a day. I also drink a lot of Gatorade. I might have a pop every 3 days or so. Rarely do I have more than one.

I get a lot of brain fog when under stress and my eyes bother me as well.

Deconditioning can lead to symptoms. Deconditioning cannot cause a permanent POTS condition, IMO.

I have the numbness as well. Its in my feet, hands, and tounge. Some days good, some days bad. No one seems to be able to give me an answer... Small Fiber is a possibility my Neuro said.

Ever since I was put on Propanalol I've been afraid of meds. Granted I was ramped up too quickly on it. Now I seem to want to give up quickly do to the side effects...

I was on Nanolol recently and due to a weird sensation and fatigue I stopped taking it.

Then before that I took 1/2 of Effexor it gave me jerks and tremors and left me on the couch the entire next day...

Friday I started Zoloft but I notice my heart rate has been high and I'm getting bad Acid Reflux. Granted its nothing like the others but I'm ready to quit it now. Where do you draw the line??? Everyone around me says suck it up and push through but WE all know how hard the trial and error can be for our meds...

I was on Effexor and and had tremors and myoclonus jerks horribly from one half of a pill.

Zoloft day 3, feel like my head is fuzzy, some other weird stuff, and acid reflux from time to time. Not sure how I feel about it yet.

Just my .02 do the courthouse. Were going to elope and do our own thing. I know family on both sides will be upset about it but I dont care I've always done my own thing. Ask yourself, do you want a night of possible failure?

Trying zoloft today. I'll report back.

Great! Definitely keep us posted!

I've recently gotten that. I'm not sure what it is and keep forgetting to ask the doc about it.

We had a record warm winter and I felt colder than ever.... My feet and hands go to extreme's as well.

Family is family, RIP to your dog. As far as overdoing it I struggle with accepting my limitations. I dont have the balance of what is too much figured out yet. I want to say no pain no gain but that probably isint the correct way of thinking for anyone with POTS...

Best of luck to ya!

Ah ha! So I've been calling Myoclonic Jerks Tremors... I fail big time when it comes to describing certain things. My fiance corrects me all the time when at the Dr's office. If only I could talk in car and motorcycle terminology...

http://en.wikipedia.org/wiki/Myoclonus

My doc told me last night tremors are light shakes and not violent jolts. What I refer to as tremors are more violent jolts along with a muscle twitch. Its similar to the feeling you get prior to falling asleep in high school. You snap to real quick and are startled. I get them in various parts of my body or full body. I get a lot of them prior to falling asleep or when I'm resting.

Discuss

I asked my Doc at the Cleveland Clinic last night and she she's sending me to a therapist who does Bio Feedback. I'll post a link if I can find one. I'm really glad I didnt jump on a plane and fly to TX.

I kind of look at it as what came first the chicken or the egg? I'm going to try Zoloft on Friday. I have a hectic work week the next two days and dont want to have any issues from the drug at work.

Yes my emotions usually determine what I watch. I still like some action and scary movies but I typically need to be having a good day to watch certain ones. Transformers, Iron Man, Star Wars, or any comic book type movie I can typically tolerate anytime. They arent gory and the fight is good VS evil. .

So would living in 2 years of constant Anxiety lead to pots?

Try to keep in mind its not real and its entertainment.

I'll admit since POTS kicked in I have changed a lot of the things I watch. I used to watch very graphic and disturbing movies. House of 1000 Corpses, Saw, etc... Now they are sitting on the shelf and I'd like to get rid of them. I also catch myself watching more cartoons. The Flinstones, Original Bugs Bunny, and a newer cartoon called Regular Show.

Here is Windy, my dog in the snow

http://www.flickr.co.../in/photostream

Great pic! He looks cold!!!

i breed frilled dragons and sailfin dragons , since i am home alot i started breeding these guys. reptiles are great and help me pass my days when i am home . since i am home alot

www.alamocityagama.com

Good looking couple! They look very happy, congrats!

I'm really glad it has helped you, daddysgirl!

I didn't complete the program for a number of different reasons, but I still believe that biofeedback has the ability to help

I did this thread about it

http://forums.dinet....__fromsearch__1

It is something you have to do consistently to see it's benefits. I'm working on a home program now. For me, at least, I know everyone is different, I need more than biofeedback. Im still working on exercise and with my main dr to find the right combination of medications.

Excellent thanks for sharing!

I'm illiterate to a lot of the terms with Dysautonomia. (Using Eddie Murphys voice from the Nutty Professor) What in Stupid dummy terms is Biofeedback exactly?