kalamazoo

No Meds as of ring now, I see my cardio within the week but my neuro wanted to out me on calcium channel blockers, I was Leary about that. so, nothing at all.

I work with children, this requires being on my feet and constant movement. My hands always swell and my feet always pool not to forget the racing heart and dizziness. I'm applying for disability .. not going so well thus far.

doesn't the CO2 range in percentages? Mine is always at 99% if that's what you're referring to

I have this same problem, especially right after I eat and in the morning. Sue, let us know how the Mayo visit goes!

What, if any abnormalities have been found in your blood tests. No matter how allegedly insignificant. No close calls. Specifically out of normal range. Mine have been: high albumin twice, low vitamin d, high hgb, high hct, low potassium reoccuring and before florinef, high mchc, high testosterone.

I have these exact same levels, especially the albumin levels. The only thing a doctor has told me is that I was dehydrated. Bologna.

I get these too .. but they're usually triggered by me being a tiny bit nervous and then it just becomes full blown and I can't control it .. rather uncomfortable.

I took klonopin before and after my issue with POTS. Before it helped with my severe anxiety, just made me feel normal. But now it makes me nervous and jittery. Not in an energetic way but like an overactive way. I stopped taking it about 6 months back and am now looking for something better ...

So do you know if this is caused my neuropathy or the POTS itself ?

I get really bad tunnel vision and everything gets a little fuzzy. I get dizzy and tingly and my heart pounds, I mean really POUNDS.

I wake up with very swollen feet and hands, its very painful. Immediately after gwtting out of bed and standing my feet turn bright red and all the blood starts pooling really bad. Also, my hands are very swollen as well and I can barely make a fist. Once I'm up and moving for a littlw it goes away but its very uncomfortable. Does anyone else have this? I'm worried its not the POTS but maybe something else....

Wow that is all very interesting ... So sorry you all have been through that though. I just worry because my legs and knees especially have been swelling bad almost every day now and that makes me worry about DVTs....

I definitely feel this, I walk to class get up sit down, up down up down .. Makes me feel horrible and always worse than just getting up and down once.

So pretty much everyone here eats lean meat fruits and veggies and organic it would seem? All in small proportions too?

Insulonomia ... I've never even heard of that, definitely something to bring up to my endo, thanks for the suggestion! Everyone on this site has such good advice from personal experience, It's great getting all these feedback, thanks everybody! I've been told my insulin levels were high before, but that's about as far as that went, I'll definitely look into that. And I'm so terrified of taking a beta blocker, heck I'm afraid to take anxiety medication. Anything that can alter my HR in anyway just scares the crap outta me, but I'll try anything.

If i stuff myself makes my heart race like crazy. Also fats, peanut butter especially. Nuts, oils, milk cheese, pretty much anything high in fat content or high carbs and sugar.

Anyone know if POTS increases chances of getting one? I would think the lower leg swelling would possibly contribute to possible clots. Always wondered about this, it keeps me up at night sometimes.

I was told hot weather exacerbate symptoms, I lived in Arizona and moved back home to Alaska after 4 years of enduring the heat and nearly dying. The heat promotes vasodilation, the cold makes me feel a lot better. I avoid the heat at all costs possible.

Kalamazoo from Alaska??? LOVE your name. My husband & I met in Kazoo during our undergraduates studies. Good times

Have you ever tried taking an antihistamine (like benadryl) during your "panic attacks"?

My name is Kala, kalamazoo is a nickname I picked up some time ago

And no, I pretty much avoid all medications, ALL. I don't even like taking and pretty much refuse to take aspirin. Although I've heard it helps with my erythromelalgia (which it didn't)

can I ask - is your hand warm when its swollen or cold?

Red - very very bright red.

Kalamazoo, I seem to have similar issues as you. I also get low blood sugar AND hand swelling. Let me tell you what I've found so far.

20 years ago I was told I had anxiety/panic attacks. I accepted the "label" and began taking anti-depressants. For the most part they helped, but I still had some breakthrough panic. Fast forward over the years, I get off of AD, still have occasional panic, and begin eating to calm it down. Three years ago I bought a glucose meter and waited for my next panic attack, which I'm sure was the next day. I tested and my blood sugar was in the 50s. I can correlate my shaky, panicky, hot flush symptoms that happen while sitting to low blood sugar. If I eat every 1 1/2 hours, I keep it at bay.

No, I also have the adrenaline issue for no reason, like Rama pointed out. If I have to talk to strangers, etc., I get anxiety symptoms which are aggravating.

And, I also get the swelling. It happens randomly throughout the day. If I get hot, above about 75F, my hands begin to swell(my feet to some point). I feel overly hot at this temperature, so I live in air-conditioning for half the year.

Can you tell me a little more about your hypoglycemia?

This sounds exactly like me! I was having super fast HR after eating and after a year or so of the doctor telling me it was anxiety (which made no sense) I finally got myself a glucose monitor. it was drop after I would eat, so horrible! My blood sugar levels are super low in the morning, I was up shakey with a fast heart rate. My blood sugar was as low as 45 one time when I hadn't eaten in like 3 hours. All my fasting glucose were super low too. I now eat very health and try to keep my blood sugar within 80-110 range. I eat every two hours, pretty much like clock work. IF my blood sugar is low, all my symptoms are aggravated.

As for the swelling, at about 65 I start swelling, and tingling. I can see the swelling starting in my veins. My hands and feet get very hot and red, some time my knees do it. This also happens if I'm laying down for a while or sitting for long periods of time. My heat intolerance is the worst part, sometimes I have to leave work because I'm so hot from walking around (which is painful and horrible)

This is exactly how I feel, I'm so sorry! My HR has gotten up to 200 before. I get this weird pressure in my head and throbbing everywhere, and of course short of breath. I feel your pain.

Oh wow! that was sure eye opening, thanks for the link!

Lucky you, it's rather troublesome .. but what part of this disease isn't! I have seen it mentioned a few times, but was curious.

I get this right before that time of the month, I get all energetic and then the next I can't leave my bed. Maybe you should keep track of when it's happening so you can see if there's any correlation involving your hormones. My gyno said it's pretty common for hormones to fluctuate along with how you feel. And that sadness, I feel it too. To be honest some days I just want to lay in bed because I do feel hopeless. It's hard going throughout a normal day without having a down moment. It's so hard moving past them but I think in our case with how life is just that much harder it's perfectly normal and completely allowed.

I have, at least 50% of the time I'm on the computer I'm researching POTS but I'd like to hear from someone personally rather than reading an article or periodical. All that stuff gets repetitive.