puppylove

Me too. If I eat a large meal, or even just drink a lot of water my stomach gets so bloated. I get shortness of breath sometimes with it too. Do you know why that happens?

Depending on the day... Mints, crackers, rice, chicken soup.

I was wondering if anyone has been to Children's Hospital of Philadelphia? How was your experience? I think I'm going to see Dr. Borris and others. Thanks!

Lately I have noticed that on bad POTS days I sneeze and sneeze all day long. At first I thought it was a coincidence, but every time I'm feeling really sick POTS wise I just sneeze so much. Does anyone know why this might happen? Thanks!

Stomach issues have been my main problem for two years now. I have a lot of the same symptoms as you. I was tested for gastroparesis which was negative. I have had a stomach ulcer and I have GERD. Sadly I haven't found anything that helps significantly yet, but I think it's normal for potsies to have these symptoms.

Are you on Midodrine? That was my worst side effect...

It's gotten to the point where if I eat ANYTHING it makes my stomach so bloated and sick feeling that I don't want to move. I have tried not eating anything for a day a couple of times but that makes me dizzy and I can't concentrate. Even drinking is a problem and makes me feel the same way. I lost about 15 pounds throughout the last month, which really isn't a bad thing because I gained weight on florinef. Not sure what to do. Does anyone have any ideas?

You described it perfectly. I get this too especially at stores and school.

YES! This happens to me too. It's horrible and way worse when I'm at school or a store.

I'm 16 too and the only way I get to sleep before 4:00 in the morning is if I take Benadryl. My doctor said not to take it every night so most times I don't go to sleep until 4:00 which is horrible. An antidepressant was recommended for me too but we decided no due to the side effects. Sorry I cant help it just sounded like you were writing this about me ! I'm going back to my doctor tomorrow so if he has any ideas I will tell you.

Me too!!

I'm really excited! I have been trying to think of a way I could inform my school about POTS, because two kids besides me at my school have it too! So maybe there are more... Anyways, I'm getting a little article in our yearbook all about POTS and home bound schooling. Yay!

Hi! Dr. Abdallah in Reston, VA is a great doctor but he is so incredibly busy that is hard to reach him and get an appointment. He is very kind and compassionate though and really knows his stuff. I'm seeing Dr. Patrick Callahan in Fairfax now, he seems really good but I have only seen him once so far. I think he is only a pediatric doctor though.

Lately I seem to catch every little cold and virus that comes through even though my whole family and I are super good with hand washing, coughing into your elbow etc... So, can POTS lower your immune system? Or could it make me more susceptible to illness? Thanks!

I had to drink a 64 ounce orange Gatorade for my colonoscopy prep and it made me feel so sick. Straight Gatorade always does. I thought it just didn't agree with me but maybe it is the dye.

Thanks for the replies everyone! I didn't finish all of the prep drink but I had enough. The results are everything is fine. Yay? Not really.... I wanted something they could fix. Oh well, going to take another route- probably looking more into adrenal gland kind of stuff. Also, the nurses and doctors took POTS seriously which is great!! They gave me two bags of saline which I wish I could get everyday lol.

I have a colonoscopy/ endoscopy on Thursday. I seriously do not know how i'm going to drink the chalky stuff they give you before hand. I can barely drink enough water because of my stomach problems/ nausea. Has anyone else had this problem? Can they give you something to help? Is there anything else I should know about POTS wise? Thanks!

I'm just so confused. I'm having extreme pelvic pain today and other symptoms recently that aren't from POTS. I was diagnosed with PCOS but pelvic pain is not usually a symptom. Now I'm all alone on Christmas because I feel too bad to go to my grandmothers house. I just wish I knew what else is wrong with me.

Hi, I had blood tests done to find out. My symptoms of this syndrome are high insulin, swelling, no periods, and obesity even though I barely eat anything since POTS gives me nausea. Thanks, if I have a question I will pm you .

I was diagnosed with PCOS yesterday. Could it be the cause of POTS or is it just like another name they slap on for the symptoms your having? If it can't cause it then I want to keep searching for why I have these syndromes... Thanks in advance!

Kind of. For me everything has kind of dark haze but lights look really bright.

Wow. This is so interesting! I really hope this helps you- can't wait to hear how it goes!

This is just so sad I can't even believe it. Those poor little children and their families and classmates.

I love "Stand" by Cassadee Pope. Really ironic title too lol.

That's so great!! Congratulations! You will make an awesome doctor.