julieph85

I have a well and had it for a year for the first time in my life before I got pots. I drank it all throughout my pregnancy. After I delivered I had it retested and the lead was over the limit as well as nitrates. Sometimes I wonder if I got lead poisoning and that is what caused my pots...

Absolutly! Yes it is my first. He's the third pots specialist for me. The first one was horrible, the second I had to fly 2000 miles to see but he was amazing, so I'm hoping third time is a charm and this one can be my local treating doc. I will report everything on Friday

Thank you so much yogini, that was a great thread!!

Glad I'm not alone! The weirdest thing is that when my bpm is that high I don't hardly sweat and don't feel short of breath at all. It is definitely a cardiac hypersensitivity thing for me. One time I had an adrenaline rush on a stationary bike when my HR was already 130 and after the rush it went up to 220. It was scary

Jangle, how high did your heart rate get up to? I've been doing 15 minutes a day on the elliptical and my HR gets up to 150 in about 2 minutes on the lowest resistance. The entire time my HR stays around 170.

Ever since I developed pots when I go to bend over I get terrible pressure in my head and then as soon as I am upright again I get terrible dizziness and tachycardia, almost feels like I'm going to pass out for a few seconds. This happens every time I bend over. This never happened before pots. Why does this happen? I'm assuming it is triggering the vagus nerve when we bend forward and causing a vasalva type reaction. But why is this so sensitive in pots? I've noticed that my vagus nerve is extremely sensitive and even slight pressure in my chest will trigger the response. I cant even drink a glass of water without triggering it. But why????

http://en.wikipedia..../Hypomagnesemia Insufficient selenium,[5] vitamin D, sunlight exposure or vitamin B6

I know a lot of us on here take magnesium supplements and claim they get benefit. I have been off mine for some time and decided to take one today. My heart rate and blood pressure have been lower this evening then they have in a long time, and i feel way more relaxed than usual. Could be a coincidence but it got me thinking. Especially about my own issues with eating carbohydrates and the extreme norepinephrine reaction I get. Look at this article- It says right in the first paragraph that ang 2 effects the bodies sensitivity to norepinephrine and Ang II. So maybe- we don't have too much ang II but are hyper sensitive to it and norepinephrine? Maybe there is something wrong with the way our bodies are using Magnesium? When my pots started I also developed pre-eclampsia at the exact same time. What's the first line treatment for pre-eclampsia? IV magnesium. Pregnant women are known to be low in magensium in the third trimester. That is when my pots started. Just a thought! http://hyper.ahajournals.org/content/21/6/1024.full.pdf

I will!

I live about 4 hours away but I guess I could use my sister in laws address in manhattan?

http://www.ncbi.nlm.nih.gov/m/pubmed/16275247/

Lemons, yes I have. I also had preeclampsia at the same time my pots started at the end of my pregnancy. There is a theory that preeclampsia is related to ang 2

Bren your mention of your hysterectomy in a previous post is what made me think of it

http://jcem.endojournals.org/content/84/2/606.full

Actually, it's not working. Google angiotensin and estrogen and you will see it as an option

Jangle I was interested in this because of the estrogen part but read the entire discussion as it relates to NOS http://www.sinoas.co...DF/2003/23%20(1)/Estrogen%20Reduces%20Angiotensin%20IIInduced%20Nitric%20Oxide%20Synthase%20and%20NAD(P)H%20Oxida.pdf P.S. - you can't just click on the link. You have to enter the whole shebang into your search bar

I'm curious because so many of us are women and some of us it started during pregnancy. There is a theory that autoimmune disorders are so prevalent in women because they can be triggered and mediated by hormones. Maybe something with estrogen and progesterone?

Ginger, did the cymbalta help your pots at all?

I get a sudden intense pressure in my head and then that stops and I get an intense woozy feeling followed by a feeling like my limbs are extremely heavy

I saw two. Both gave me the blank 3 minute stare and then said "that's really interesting" "i would just change your diet" DUHHHH!!!!! But that does not explain all my other hyperandrenergic symptoms or give me a reason, which is what I want

I know doesn't it sound just like reactive hypoglycemia! The problem is ive checked my blood sugar during an attack and it is well within the normal range. I also typically eat an extremely high carb, low fat diet- with moderate alcohol intake, so you would think it would be that, but I've never been able to show low blood sugar. I've thought about the post prandial hyperandrenergic syndrome, and I'm sure that's what I've got, but there is NO info at all out there about it so I have no idea where to go with that.

I absolutely will Issie!

Rama, I couldn't agree more about placebo effect. I don't know how many times I have wished a doc would prescribe me a sugar pill and tell me it will take all my symptoms away. I know I would at least get some temporary relief

Thank you thankful I've placed a call into his office.

I've thought about that, but it happens even if it is something without gluten- like the fruit snacks yesterday. Also, it's not really an mcad type reaction, it's a catecholamine release. In fact the symptoms are identical to what happens if I get real nervous about something and I start releasing adrenaline. I just don't understand why I am so sensitive to the norepinephrine? It has to be some sort of new disease. The only known thing that causes a similar phenomenon is hyperthyroidism but my levels are mostly normal.