Olive

That is so wrong. I would try Starbucks. I've been told they pay good and have really good benefits.

Praying for ya'll. I know you are in good hands now.

Dr Cherdak said it was definitely POTS probably related to my B12 being was to low. She said it may not go away, but shouldn't get any worse with increasing my B12. She gave me florinef and increased the propranolol. At least it's official, but it's what I already new.

My cardiac experience is with adults not baby's, but I assume some is the same. I would think the higher his heart rate the better cardiac output (function) he is getting. Adding to that, I do know that babies require a higher heart rate. I would think he is less grumpy because he feels better. That is my experience with adults we pace them all of the time after surgery to get a higher heart rate and better output. Hope this helps some. Ollie

It's good that he is willing to listen to you and try to help you. What more can you ask for? A cause would be nice, but maybe if he gets on top of this they can get you closer to a cause. Good luck. If you ever make it to Nashville I will help you out.

Before this I had multiple stomach surgeries and malnutrition. So I've been sick for over 4 years. I lost most all of my friends. Someone once said that people didn't want to be around someone that was sick or feeling down a lot. I thought if they were my true friends they would want to be around me more and help out. That's what I would have done if it had been them. I have kept one friend and she is wonderful. Also I started dating my now husband 3 years ago. The night after our first date I was hospitalized and he was up there visiting several times. He has been with me through a lot of surgeries and now this. Never once has he thought about leaving. I'm truelly blessed to have met a man as wonderful as him. Other than those two people I have my mom and dad that support me.

I wanted to ask ya'll what are some good questions for a newbie to ask the autonomic cardiologist on my first appointment. I have been taking notes about different medications and looked them up. Right now I'm just on a low dose beta blocker and klonipin for anxiety. I am very pro active in my care and believe in questioning doctors. I want to know the why and why nots of everything and how it works. I will probably be her worst nightmare. I want it explained down to the cellular level. I don't want them to say you have POTS and that be it. I want to know why and what can be done to cure what I have. My symptoms are tachycardia, extreme exhaustion, head aches, joint pain, orthostatic hypotension and sob. Thank you for any advice you can give.

Woohoo! Just got a call that they have a cancellation and my appointment is moved up from the middle of August to this Friday. This is with the autonomic cardiologis who is also a neurologist at Vanderbilt. They plan to do autonomic testing, not sure what all that entails. I have only had the TTT, which I fainted. I feel I meet the symptoms of POTS. My hr shoots up when standing, fatigue, headaches, pins and needles in my legs. Now to maybe get a diagnosis. Not sure how much it matters, but none the less. The only issue I have is after 3 years of struggling with malnutrition and being to thin, I had a gastrectomy (fistulas from my stomach to intestine so I didn't absorb anything). I now feel like I'm absorbing everything twice, lol. I have been unactive since surgery, I had to have a wound vac after surgery to heal my incision, it popped open. I just thought I was having a extremely difficult time bouncing back from this surgery til they found the cardiac problem. Wish me luck.

I pray for you and the pain your in. Don't accept the way things are now. Don't give in. Fight to get that independence back. You are still young and have a lot of living left to do.

I have found that having my husband read this web site has helped. He does still try to encourage me to do things which sometimes makes me feel guilty that I can't always do it, but I try. I would think education for them would be the most important. I know you hate having to rely on others and would love to be independent. Good luck.

Wine actually helps my klonipin. lol. It never has given me headaches. Right now I can't tolerate alcohol with the tachycardia. It will defintely make me faint. Still waiting on a official diagnosis.

I am in Nashville. I have not been diagnosed with anything just yet. Still waiting to see the Dr. Did you say you get your B12 twice a week? I had to go to weekly last month because mine was low, but I'm supposed to go back to monthly.

Thank you for the warm welcome. The problem with iron is I don't absorb it through my GI tract. I have had my stomach and part of my intestine removed. I have to take B12 injections and the only way to get iron is a infusion. I wish it was as simple as being able to eat something. I think I would even eat liver right now if it would help, but it won't. I'm at the doctor's mercy. I go to see another GI doctor this month and I'm hoping he will give me a infusion.

Hi I'm new here. I am 37 and I have a long history of stomach surgeries ending last year when they removed it. I started having problems with tachycardia so my doctor ordered a halter monitor. My heart rate ranged from 40-150. She didn't want to mess with given me beta blockers and sent me to a cardiologist at Vanderbilt that I knew. He started with trying to increase fluids, but that didn't help. Memorial Day weekend I had a fainting episode where witnesses thought it was a seizure, because I had fainted in February my PCP thought I should see a neurologist. I just happened to be going back to my cardiologist and mentioned the event to him. He said he thought it was cardiac and started me on beta blocker. I went for a TTT that was positive. My hr went up to 120 almost immediately and after 30 minutes of being week, diaphoretic, and feeling sharp pains in my legs I became nauseated and fainted. On the monitor my rhythm and hr changed some (could have been vagal) and my bp dropped to 40/20. I now have a appointment with a autonomic cardiologist/neurologist. Not sure what they are calling it yet. My symptoms are heart palpatations with sob, head aches, extreme fatigue and muscle fatigue (I feel like I have ran a marathon). When I try to exercise just a little my hr goes to 140 even with the beta blockers. Right now all I can do is a couple of minutes on the eleptical and a couple of miles on the bike. I am trying to build up my strenght because I'm starting a new job next week. I have no muscle mass because of my previous illness. My ferritin level is 7, but hematocrit is ok (I had a iron infusion in January, but my GI doctor is out sick and new doctor doesn't want to infuse even though I told him I felt better for a while after). I have a lot of issues with hypoglycemia. I'm very frustrated right now because I've been sick for so long and I just want to be well and be able to work. Reading this forum has helped.