misstraci

Has anyone ever heard of or been to the autonomic/mitral valve prolapse center in Birmingham Alabama?

I've also wondered about the salt thing. I don't take salt tabs nor have I tried them but I tend to try and eat salty foods and salt my food. I can't tell a difference personally for example, today for lunch I had a can of chili that was filled with mega sodium and a bag of chips (healthy I know) but I still felt miserable afterwards

ramakentesh... Do you happen to know what exactly happens to the seritonin during hormonal times and also if you are on an SSRI, which also affects seritonin, what that means as well?

Thanks

thanks all of you for writing. I had recently started on lexapro and although I feel no where near wonderful, I had definitely been telling a difference that I can stand and not feel like I'm going to pass out, well yesterday and today have been miserable, I feel like death and am so sad because I was excited about the new med and now I'm scared it's stopped working already and it's only been about 2-3 weeks of it. Anyways, thanks, maybe it's just hormones that are causing me to all of sudden feel extra worse again.

Does anyone feel worse or better around their period? (hopefully this isn't a TMI post) but I was just curious if this is a true story that females with dysautonmia/pots feel worse at different times during the "cycle"?

Thanks

I also don't know what to say. You are all in my thoughts right now and so sorry for what you and your family are going through. I hope that it gets worked out and soon!!!

dani... I'm sorry. I can't seem to understand if it helps me or doesn't. I feel good at the moment but then sometimes later I feel crappy and yes I get the palpitations.

volley9.... what about chocolate? you could eat that. and what is Spark? I don't think of heard of it.

tearose, 718mom, KeXia... thanks guys!

thanks guys, you're the best!!!

thanks guys!!! I always like to compare my feelings to those of others just to see if our experiences are similar or what.

BellaMia..... what does dark chocolate do? Thats my favorite

thanks, you are all very helpful as always!!

I wanted to see what others' experience was with caffeine. Do you steer clear of it because it makes you feel worse or do you have some because it helps?

I don't drink soda or coffee but I do eat quite a lot of chocolate and have some tea. I was wondering if these habits could potentially be harming me. More specifially, I've been having in my chest what feels like my heart doing flip flops and sumersaults. Not sure if this is related to the caffeine or an issue with my heart itself.

Any ideas?

haha, kudos to me! I read your whole thing, it wasn't that long. Sorry for your being sick and not feeling well. I can't speak for the zoloft as I've never taken it but I just started lexapro and can already tell I feel a bit better. Don't get me wrong, I still feel bad but better I think. I don't know too much about the salt issue, I just tend to eat more salty snacks such as chips and pretzels and then salt my food. Some people take salt tablets and that may be helpful for you if you don't care for the actual salting of food. I should try vitamin water, I've never had it, I drink powerade a lot and maybe it's psychological but it helps for a minute.

Good luck!

thank you all for the replies here. I enjoy reading them but I'm sorry you feel so cruddy, and me too. I wanted to hear what other go through and if it were similar to my own experiences.

If you don't mind me asking, what is MG?

Top 5 symptoms in order of worst with 1 being the worst.

1. lightheadedness (feeling like i'm going to pass out)

2. head weirdness/pressure

3. brain fog ?

4. trouble breathing

5. heart palpitations

yes, that has happened to me many times. my cortisol levels were low and they told me they were normal.

My MRI report said the following:

"Mild increased signal in the scattered sulci bilaterally on FLAIR sequences, likely representing artifact."

I was told everything came back normal and that's great but I was just curious what this statement meant. Whatever it is is "mild" but I can't figure out what it's talking about.

Thanks

I am also interested in allergy meds.

Could someone explain the difference between H1, H2, and antihistimine?

I tried to look this up on my own prior to writing here but I just couldn't find and understand.

Thank you

Sounds wonderful. So glad you all were able to get in next week instead of September and sounds good that they will keep her IF the tests being performed do not come back right. Good luck, let us know what happens!!

oh wow, that is scary because that sounds verbatum like what comes out of my mouth. I feel like i wrote that vent. I too was healthy until one day at work when i was walking and then nearly blacked out and dropped to the ground and since that day have been ill with all this and not being diagnosed for 8 months, i'm still not convinced with my diagnoses, even though it was confirmed. i love my family also but i hate living this way. if it weren't for my boyfriend and kids, i can't promise i wouldn't try and do something crazy. i always try to keep my head up and know that things have just got to get better and what if, as quickly as this crap hit me, it goes away just as quickly. like i wake up one day and feel wonderful from then on out. i don't know and don't know what to suggest to you as I am in the same boat.

How about think happy thoughts, have faith, hope for the best, etc, etc.

I hope you get to feeling better!!!!

lieze.... thank you for responding. i've never thought that it could be a migraine related kind of thing. I should look into treatment for that and maybe that could be my answer or I could try the hat thing. Thanks, i'm also glad the scan came back fine.

oh wonderful, thank you!!

hello everyone.

I'd like to hear about lexapro and who takes it/took it and if you did and don't anymore, why not?

What kind of side effects did you have? nausea, weight gain, etc. I've heard it causes awful of both those symptoms.

Did it help with your POTS at all?

Thank you

DBP..... I hope you're feeling better coming off the lexapro. and I hope someone else can answer those other questions that you had because I don't know.

dani, glad to hear that you didn't have all the bad effects I've been hearing about.

naomi.... northerndarlene... thank you guys for your responses.

I'm sorry Brynne! I know the feelings you're having and going through, except instead of not being able to attend school, I've been having trouble attneding work. I know it's different, but it is similar. I have good and bad days, however the good are like 10% and the bad 90%. You never know until you wake up and then even then, each moment and hour can change at the drop of a hat. My heart does go out to you because like you say, you are in one of the best times of your life. I am 27 and instead of being able to enjoy my young adult life and my baby like others my age are doing, i'm having to have help with the miniscule things and hoping i can get through each day, etc.

so, i wish I could help you or give awesome advice but I guess i'm moreso saying i can relate and don't feel alone because we understand you and part of what it's like. and i do have all those feelings you have and to deal, i just remind myself that yes things suck for me but at the same time, they could always be worse! Also, suround myself with things and people I love

good for you!!! you spoke up and I admire that. I've always been timid and inferior around doctors but I know I shouldn't be. I'm happy and I hope he finds some answers for you.