Cobramarty

I just want to thank everyone here. I wish everyone only the best in their health and endeavors. CM

Thank you Sue1234.

That is inappropriate. I am not a representative or employee for ANSAR. I didn't say I am not using ANSAR testing. Please don't hijack this thread for your personal agenda.

Thanks MKOven, So with treatment did your repeat test improve? How long after the first did you have the repeat?

MM, Please don't start again with 'you make me a little uncomfortable as well'. I have searched all past ANSAR posts. I am NOT associated with ANSAR. There is a problem with some of the practices using this test. Few doctors know what to actually do with the results. ANSAR shamelessly promotes it to them to test patients in their practices as an additional income revenue stream. This is wrong! There is a past post about this from several years ago. JanetRN does a good job in trying to explain this test. I will not repeat this. JanetRN ANSAR Thread

Has anyone had it done? What do you think? What is your understanding of it? What would you want it to do or answer? Just asking.

Not by me. If you would like to buy me a cup of coffee, thank you. But for you MM it is all free. Interesting that not a single donation in the month it was up. It's not about the money or any sale.

Sue1234, look over at the start of this thread, do you answer yes to any? I learn everyday and usually learn the most from my patients. I am grateful for having everyone as my teacher. In fact here i read about turmeric. Very interesting. I wonder why certain cultures are resistant to certain diseases and when they move say to the US they get these diseases. I want to stop at my local ethnic store for some.

Thank you Tearose. When one is enthusiastic about a subject or topic, it is hard to get it out sometimes.

Board Certified Internest, Board certified emergency medicine physician not PA or want to be anything, with over 20 years of experience. I have many interests and am particularly interested in DysA. I have studied and read most everything out there about DysA. I work closely with another cardiologist physician who specializes in ANS dysfunction, treatment and research. He has 10 years and over 5,000 patients experience in DysA. I have nothing to sell, nothing to peddle. No hidden agenda. I didn't see an area for biography in my profile here. I hope this answers some of your doubts.

Tearose, sorry to hear you disappointment. What test is used to follow ANS dysfunction? The TTT? What test does your doctor use to follow your DysA dysfuntion. The TTT is in your words 'not worth doing. It is a waste of our limited time and money". What does it measure? Can it follow a disease recovery or progression? I resent your comment "undisclosed, unwilling to share newbie". Be nice, play nice. I have no ax to grind here.

Dysautonomia(DysA) is an imbalance of the ANS. The sympathetic(SNS) and parasympathetic(PNS) nervous systems are out of balance. The sns and pns can be measured and followed. DysA is a central/core disorder with many variable peripheral signs and symptoms. Most current practitioners treat the peripheral and not the central core problem. So if one complains of tachycardia they get a peripheral acting B blocker, hypotension- florinef, anxiety- benzos, depression-antidepressant, joint/muscle pains- pain meds, lyrica, nerve complaints- neurontin, elevated/fluctating glucose levels- insulin, and the list goes on. Are any or these drugs treating the actual problem- DysA or are they just treating a complaint. If you are taking a drug and you still are having symptoms and it is not treating the underlying problem, Why keep taking it? Oh yeah the doctor will just up the dose because the drug is not working and now you get a whole new list of SE and complaints. We treat chronic diseases very poorly for the most part. Treatment from the outside, peripherally is not the answer.

I agree with you Sue1234. I believe the food we eat today is very different than what we ate just 50 years ago. Take the apple for instance. It has been genetically engineered, hybrid breed, selected out to grow faster, grow bigger, stay ripe longer, be more colorful, insect resistant, etc. The apple of past was small, dense, different tasting and more nutritionally sound. Yes these are 'natural' grown in nature but not the way nature intended. Sorry to get off track a little with the foods. Someone earlier asked and I was just answering. Back to Dysautonomia. How were you diagnosed? How is your doctor treating you? How is your doctor following your treatment? With their treatment are you being cured? I am very disappointed with current western medicine. We are pretty good at acute illnesses(trauma, stroke, heart centers, etc.) but stink at chronic illnesses. We are a pharmaceutical/drug pushing medical society. You have a complaint, you get a drug. Health care is pharmaceutically driven. This is how doctors are taught. OK not all but certainly most. They develop a drug and then find a disease to use it on. Thank you everyone for contributing to this thread. Your input is valuable and mentally stimulating. Dysautonomia is an old disease but today it is more understood by more. Current thinking and treatment is 10 years ahead of its time.

So how can we learn from each other if we are not here on this forum. I didn't question your mast dx and only tried to ask and understand how everyone is being dx with dysaotonomia. I ask, What is the dx. tool usedfor dysautonomia? Why am I here? To share and learn about dysautonomia. This is DINET. am I on the wrong site? I have not allways lived what I think today but as I learn and change . I try to use what I have learned everyday.

Nowhere did I say avoiding wheat, sugar, corn, milk, or aspertatme would cure/tx dysautonomia. You are absolutely right that we have only scratched the surface of knowledge.

No insult intended. No insensitivity meant. Sorry if you felt offended. I'm not name calling anyone. My point was ,what set off the mast cells? Why are the mast cells on overdrive? I am sorry to hear about your fiends daughter. I never proclaimed to be able to cure all autoimmune dzs. But I hate it when other physicians tell patients that they have an autoimmune, collogen vasc dz, rheumatoid dz, etc and all of the test are negative. Your doctors are not keeping info from you, it is they just don't know or understand. I don't have all the answers and encourage everyone to ask questions, ask why. I just have some info to share. Everyday I am allways learning. Differences are different points of view.

There is no magic bullet and no single one cure all. Sometimes a little bit here and a little bit there. There are many things that can cause dysautonomia and a whole other set of things that can cause inflammation. I find it interesting that you have an 'allergic' disorder with no allergies, low IgE, nl ESR and CRP, 'idiopathic'(which is a fancy word for I'm the doctor and I don't know but I will make up something because I can't test it or prove it). And you have an unknown Collagen Vasc Dz which means I(doctor) can't figure it out and all your tests are negative but I am a specialist and I have to give you a diagnosis of my speciality. This is what I hate about some doctors today. And you the patient suffers. What you do have is an unexplained inflammatory condition which is setting off low grade inflammatory reaction in my body (your mast cells) and causes many symptoms. What tests did they use to diagnosis your MCAD? What kind of specialist made this diagnosis? Inflammation is under the control of the ANS. So some unknown antigen is causing inflammation and causing the mast cells to release their substances which causes more symptoms which your doctor gives you more meds to combat which cause more side effects which requires more meds and on and on. What was at the beginning of this process? Maybe it is the other way around. What if your Dsyautonomia is causing the MCAD. As far as glutten free you are right it is very hard. But there is more and more on the grocery shelves and many sites which have glutten free items. That is wonderful that you are allready sugar free, corn free(but watch out for things with corn syrup in them) and diet soda free. How did they diagnose your dysautonomia? I hope this helps a bit.

Your complete history helps matters. I didn't say glutten free would heal dysautonomia. So what test have you had for your dsyautonomia? Have you had the ANSAR test?

All cells have the innate code to live and survive. It is in our genetic code. The cells will adapt and survive. That is what they know how to do. Many cells are replace with new cells on a regular basis. A red blood cell only live for 90 days. All your cells are constantly being replaced. Your whole body is replaced every 7 years(bones cells take the longest). Your case is interesting. In your signature you have: POTS, NMH, mast cell activation disorder, unknown connective tissue disorder, colonic inertia, chronic hives, reactive hypoglycemia Prior History: chronic sinusitis, migraines, interstitial cystitis, IBS-D, chostochondritis, osteoarthritis Meds: 300mg ranitidine, 10mg zyrtec, 10mg singulair, 25mg atarax, 50grams Miralax, 50mg doxycycline, and epi-pen as needed Other helps: Frequent small meals with lots of protein & complex carbs, You are on 4 anti-inflam. allergic type meds- ranitidine, zyrtec, singular, atarax All your 'diseases' have one thing in common- INFLAMATION! All diseases have a spectrum from 0 to 100%. In the case of wheat, there is true Celiac with small bowel biopsy positive to gluten intolerance with all the sx of celiac but normal small bowel bx. to GLUTEN SENSITIVITY. Google and look up symptoms of glutten sensitivity. There is no test for this except a 30 day gluten free trial. Have you ever tried a glutten free diet? I have seen many people with similiar complaints to yours. You are obviously very active in your health but I would suggest to you to try a 30 day glutten-free diet and I would love to see how you feel. What if you feel much better! Do you drink diet sodas? I hope this helps.

What do all these illnesses have in common?? Chronic Fatigue Syndrome, Mitral Valve Prolapse, Vasovagal Syncope, Neurocardiogenic Syncope, Panic Attacks/Anxiety Disorder, Inappropriate Sinus Tachycardia (IST), Irritable Bowel Syndrome (IBS), Postural Orthostatic Tachycardia Syndrome (POTS), Fibromyalgia, ADD/ADHD, Diabetes Mellitus, Peripheral Vascular Disease, Coronary Artery Disease, Inflammation/Inflammatory Reactions, Reflex Sympathetic Dystrophy These are all names for the same disease namely 'DYSAUTONOMIA' an ANS Dysfunction disease. Depending on which symptoms are more predominate, and which specialist you go see, you get a different name for the same disease.

NATURE IS PERFECT, EVOLUTION IS PERFECT. Nature knows how to heal itself, and evolution/time has perfected it. Every time man thinks that they are smarter than nature, we mess it up! Humans are the only 'animal' that drinks milk in their adult life and Humans are the only 'animal' that drinks milk from another species. Cow's Milk proteins are foreign to humans and we react to them. Why do you think that adults are 'Lactose Intolerant". We are not meant to drink/eat milk products.

ANS Dysfunction and many diseases today we are finding that there is an inflammatory component to them. Why? If you look at what we eat especially in the last 500 years or so you will see that we are exposed to 'new' foods that evolutionarily we have never been exposed to. And we are reacting to them. I write about this on my blog. Here I copied it: 5 Foods not to Eat!! Nature is perfect. Evolution is perfect. For millions of years, nature has done it right and always will. Nature will survive. We have evolved to eat certain foods. When man gets involved, this 'perfect nature' is put out of balance. In the last 1000 years and even more recently, man has interfered with our foods and food chain. Why are more and more diseases and illnesses found to have an immunologic component to them. Like heart disease, diabetes, arthritis, bowel diseases, cancers. There are foods today that were not narurally occuring in nature and we are now ingesting them. These foods are not natural for us and our bodies are reacting to them! After all these years, all the diets, readings, and research I have done, I have found what I believe to be the right answers. There is a little grain of truth in everything that I have read and I had to put it all together. My Food Plan is very simple. It is: No Sugar No Wheat No Corn No Milk No Aspartame I will go into each of these and tell you why I believe this. NO SUGAR The history of sugar is very interesting and quite young. These are a few summary articles on the history of sugar. Please click on them and read them. Article #1, Article #2, Article #3. Just google 'history of sugar' for some fascinating reading. To summarize about sugar: 510BC 1st used by man in Polynesia and New Guinea where it spread to India 642AD expansion of sugar to other lands 1099 1st recorded in England 1319 Costs 'two shillings a pound' equivalent to $100 per kilo today 1493 Columbus took sugar cane plants to grow in the Caribbean 1690 brought to United States 1750 there are 120 refineries in Britain, "white gold" and taxed it heavily 1874 abolished tax and made it affordable to ordinary citizens Today costs 41 cents per pound Average american consumes 43 pounds of sugar per year NO WHEAT The history of wheat is also very interesting and quite young. Here are some summary articles on the history of wheat. Please click on them for some interesting reading. Article #1, Article #2. Please also google 'history of wheat' for some additional information. To summarize about wheat: 11,000 1st grown and eaten in southwest Asia 2000BC wheat as a weed 1602 1st to United States 1611 George Washington 1st to grow wheat instead of tobacco. He wanted to make america the 'Granary' to the world. 1834 New Reaping and Thrashing machines invented decreasing time by 90%. Also a time for Milling machines, fertilizers and railroads 1880 Steam Engine and 1920 Internal Combustion Engine allowed the planting of larger areas and to harvest it in a shorter time 1940 before 1 bushel by manual labor took 4 1/2 hours, now took 16 minutes (95% reduction) Today wheat supplies 20% of worlds calories, 1 bushel weighs 60 pounds Today 1% of world has Celiac Disease an immune response to gluten causing an inflammatory reaction in the body Today average world wheat consumption is 220 pounds per year, United States average wheat consumption is 276 pounds per year NO CORN The history of corn is also short and interesting. Click on one of these summary articles on the history of corn. Article #1, Article #2, Article #3. To summarize about Corn: It would not exist today if it were not for humans. It is a human invention! It does not exist in the wild. 4000-3000BC Developed in Mexico from a wild grass and called 'teosinte' or 'Maize" which has a smaller and not close together kernel 1000s Mexico maize moves to southwest United States 1493 Columbus discovers america and corn and brings it back to Spain and it spreads throughout Europe and the world 1700s turn corn into sugar and alcohol! and TAXES! 1844 corn refined into corn starch and there is also corn gluten! 1866 production of glucose from corn starch 1882 manufacturing of refined corn sugar 1921 corn syrup developed Today Corn is the largest crop in the United States in acres and value Today Corn can grow in as little as 12 inches of water or in 400 inches of rainfall NO MILK Milk has a very interesting history. Remember that nature is perfect. Did you know that humans are the only animal in nature to drink milk as adults and humans are the only ones in nature who drink milk from another species. We drink milk to make the milk board and farmers rich. Click on one of these summary articles on the history of milk. Article #1, Article #2, Article #3. To summarize about milk: The use of milk as a beverage started withthe domestication of animals 9000BC Goats and sheep were domesticated in Iran 7000BC Cattle were heardes in Turkey an Africa and used to make cheese and its uses spread throughout Europe 1600s cattle brought to United States and milk used mostly on farms 1790 large cities wanted milk 1856 making condensed milk 1863 pasteurization developed 1884 1st bottle milk 1908 Chicago requires pasteurized milk, other cities follow Today Humans are the exception in the Natural world by consuming milk past infancy. Most humans lose the ability to fully digest milk after childhood. Ever wonder why nature does this? Today Cow Milk Allergy is an immunologically mediated adverse reaction to milk protein Today Additional Growth Hormone is give to increase milk production which also stimulates Cancer growth in humans. NO ASPARTAME This is very bad!! Aspartame breaks down to Methanol and Formaldehyde above 86 degrees. What temperature is the human body? 98.6. All the side effects and problems are due to these chemicals. There are 92 signs and symptoms that are caused by aspartame. SO WHAT CAN YOU EAT? If it WALKS, SWIMS, or FLIES, or if it is COLORFUL--RED, BLUE, ORANGE, or GREEN. I hope this helps.

In my first day of pharmacology class the professor stood up and said and I will never forget, "ALL DRUGS/MEDICATIONS ARE POISONS, SOME JUST HAVE BENEFICIAL SIDE EFFECTS". Having said that, one has to be careful of all drugs/meds especially those taken for a long time. When drugs are take in low dose they have one set of side effects and when take at higher doses they have different SE. When drugs/meds are mixed they have completely have different SE and can amplify SE of each other. Supplements and Vitamins should also be considered in this group.

All of your systems are of Dysautonomia. This is a disease of the ANS which is made up of the sympathetic and parasympathetic nervous systems. An imbalance of your ANS will give you symptoms.. Depending on which is out of balance you will have different symptoms. That is why you have pupil changes. POTS is not the disease, it is a syndrome which is just signs and symptoms. The real problem is an ANS imbalance. The TTT is a crude test to dx ANS dysftn. Try and find a doctor who understands and does the ANSAR test. This test will actually evaluate the ANS and tell you what is wrong. I hope this helps. See my other post about Dysautonomia Info.

I also know a lot about the ANSAR test and can answer some questions about it.