pat57

sounds like your making headway. Good for you. I know nothing about mastocytosis, I hope there is good treatment, if it is that.

good luck!

OMG -lasagna!

you are experianing centrifugal force, this little info concurs it causes strain.

http://ieeexplore.ieee.org/xpl/freeabs_all...;isnumber=29303

have you searched the subject? Try ictal state, post ictal, and aura. These are componates of many seizures. Of course seach seizure too. It is for a doctor to sort out but may help you clarifiy your description for him.

I'm so sorry about the ordeal you have been thru.

I wanted to suggest a menu that can be prepared ahead. You can make the vegys and side dish ahead and just reheat. Some meats you can do that with.

good luck

you sound like a good canidate for bio feed back. And they would have a good answer for you too. Doing this without guideance you may make an important mistake.

Beats me!

I have lots of practice controling anxiety. Cognitive therapy. I think this also would be a good thing for you. "We" do not suppress emotions "we" let them come and let them go. It most certainly does reduce the physilogical response. It does not appear as suppression of emotions either. Its a very simply process works magnificintly but takes daily practice and months of teaching.

Either would probably take a good block of time, but I believe would be well worth it.

new shirt that wasn't washed first- maybe? A borrowed shirt? A dry cleaned shirt?

I would ask her office if she is familiar with chiari and related issues.but I recommend Dr. Qi sellerville Pa. I will PM the phone number.

WONDERFUL dR.

I use the line, "my body is unable to properly regulate my blood pressure".

And then when they see a particular sympton, it simply is "what happens when your body is unable to properly regulate your blood pressure". I do often say it is not dangerous because I am forced to lay down sometimes and people get scared.

thanks melissia , and good to "see" you.

I'm not, but was wondering what his specialty is. EP or neuro- or what?

my 1st was at the age of 39 and they found a large polup . 1sonagram. Not that I know what that means but the dr. said it was large. 2nd was clear. 3rd found 2- to small to remove then.

"Nuclear pictures of the heart are taken before and after exercising. Abnormalities in these pictures can tell your doctor if there is a blockage in the arteries of your heart. It can even tell if you had a heart attack in the past. The test will also calculate the "ejection fraction" which is a measure of how well the heart muscle contracts.'

http://www.arundelheart.com/new_page_3.htm

awesome!

WoW, hope you can sleep, between now and then!!!!!!

well Maxine,

I had my 3 without any sedation. The first two not bad. That was dr. Hale, the 3rd, different dr.- Pretty bad. Plan to use versed next time.

I have no doubt Dr Hale is exceptional. He typically uses no sedation. If you ask me, he just knows how to use that thing likke a master.

I had a friend that was admited in the HOSP for the test. Maybe you should ask if that's possible. She (obviously) had other factors that make the

procedure tricky. As do you.

good luck!

yes I would do it again, my 4th is scheduled for January. I take off the day of prep and 2 days after. Increased symptons from poor hydration.

I have NCS- not POTS. I do hate it tho!

please post to us after you speak with the Dr. And hang in there, this too shall pass.

mine is a "symbolpedic", local here- I think. Also half the pice.

He is taking a strong stand

EI saying"be assessed down in boston because they were all wrong in maine and that I would be making a huge mistake by having gastric pacing...."

you would be be wise to pay attention.

Dr. opinion are Dr. opinions. As far as the test, there is probally a reason he is not in aggreement.

For example: Cardiologist said I had pseudo seziures- see a shrink, the shrink ordered a SPECT scan for me, it came back, "possible seziure foci". I was DX with epilepsy. Put on heavy doses of carbamaziphine. I deleveopled cholitus (spelling) he said take imodium, I said no, change the med. He said get another Dr. I went to nerou who said, we do not DX elipepsy from a single positive result. Turned out to be NCS. And BTW the cardio did eegs etc. but not the SPECT scan.

On the other hand my shrink took a strong stand too. So the whole process is difficult, but you will get through it, unfornutantly the frustrations you are facing are not unusal.

IMO opinion , its a lot of work to get to the heart of the matter. AND we think a test is indisputeable, sometimes they are sometimes there are not- as I tryed to express.

Since you are "tired of all this" maybe give yourself a few months respite from the appts.

I love my memory foam bed, a bought it because of joint pain not EDS. It helps me. I do find turning a bit of a chore, its like your in it, not on it.

baffles me too. Cardiotec was started on it and her HR is 200. Hopefully she can clear it up.

try socail services, there is some kind of work training for folks with health limitations.

my sympathies- not fair!

bump (need this to remind me) pay day is tommorrow!

wishing you great sucess!