worththewords Posted January 11, 2008 Report Share Posted January 11, 2008 I have my disability hearing on Feb. 8th. It took 2 years to get the court date. My attorney asked me to bring in articles written about POTS that can support that it is disabling so that he can present them to the Judge. Anyone know of any good articles? I found one from Dr. Grubb but it lacks the 'disabling' part. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 12, 2008 Report Share Posted January 12, 2008 link to Mayo's article on POTS and quality of lifehttp://www.ncbi.nlm.nih.gov/pubmed/1205912...Pubmed_RVDocSumthis article is newer, from another source, but also talks about impaired quality of life.http://www.ncbi.nlm.nih.gov/pubmed/1776743...Pubmed_RVDocSum Quote Link to comment Share on other sites More sharing options...
Lenna Posted January 12, 2008 Report Share Posted January 12, 2008 Check out http://www.dinet.org/pots_an_overview.htm.The 4th paragraph from the bottom states:The symptoms of POTS are life altering and debilitating at times. POTS patients use about three times more energy to stand than a healthy person (Grubb, 2002). It is as if these patients are running in place all the time. Activities such as housework, bathing, and even meals can exacerbate symptoms (Grubb, Kanjwal & Kosinski, 2006). Research shows that POTS patients' quality of life is similar to those with congestive heart failure and chronic obstructive pulmonary disease (Benrud-Larson, Dewar, Sandroni, Rummans, Haythornthwaite & Low, 2002) Most patients will have to make some lifestyle adjustments to cope with this disorder. Hope that helps.Lenna Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 12, 2008 Report Share Posted January 12, 2008 Lenna, the first article I linked to is the Benrud-Larson, et. al. from Mayo. Quote Link to comment Share on other sites More sharing options...
worththewords Posted January 12, 2008 Author Report Share Posted January 12, 2008 Thanks for the links! And also the e-mails and PMs I've been getting. I really appreciate the support. I sort of drew a blank despite all the articles I've read over the years and worried I wouldn't find one with the 'disabling' wording. My own attorney kind of scratches his head when I try to explain this condition so he wanted to have a better understanding and he figures the judge is going to be clueless. According to my attorney I got a judge who is "easy," my hearing is on a Friday, and it's right before lunch time. Apparently these things are all in my favor. Of course it sounds a bit biased! I guess I'd hate to have a hearing on a Monday morning?! This has been a long time coming. I filed in 2004 and was obviously denied. In 2005, I was told I would be given a hearing but then never heard anything about it. I almost thought I was forgotten in the shuffle until my attorney's office called in December to say I was getting a court date. Quote Link to comment Share on other sites More sharing options...
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