worththewords Posted October 16, 2007 Report Share Posted October 16, 2007 My mom was diagnosed with autonomic neuropathy after finishing chemo treatments. The neuro put her on mestinon and it really helped her with her symptoms. However, she has the wobbles, gets close to fainting, and sometimes does faint. However, I must say she does ignore her warning signs. For example, one day she told me she was dizzy and she didn't look so good. I told her to sit down and she kept walking and passed right out. So in some ways she is her own worst enemy. Anyway, after being on mestinon awhile her fainting started increasing and she had zero energy. I swear I developed inspector gadget arms (go go gadget arms!) and I was running around catching her all the time so she didn't hit her head on anything. She did a holter monitor and it showed her average HR was 40 and she spent the majority of the 24 hour holter in the 30's-40's. Her cardiologist scheduled her for a pacemaker then realized maybe the mestinon was causing it. She went off the mestinon and the HR came up to about 55. She still wobbles and almost faints and had one fainting spell off mestinon. Both neuro and cardio wanted her just to stay off meds, however, the joint pains and muscle aches were too much.The neuro doesn't entirely believe the mestinon is the cause of her low HR and put her back on it. Her neuropathy symptoms went away but now the cardio wants her to try other meds because it isn't healthy to keep her HR so low. They are both scratching their heads on what meds though. Just curious, besides mestinon, what helps for autonomic neuropathy? And knowing it can lower your HR makes me want to take mestinon, my resting heart rate is in the low 100's. If only my mom and I could just divide up our heart rates, we would be in good shape. Quote Link to comment Share on other sites More sharing options...
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