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New With Some Questions!


Heartwillforever
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Hi everyone. My name is Heather. I was diagnosed with POTS in 2003. About five years ago I would pass out alot during standing, and exercise. My heart rate would be around 180. My Blood pressure would be always low.I was always dizzy, and had so many other symptoms along with this. I saw a cardiologist but he pretty much just thought I was crazy, so he told me to see another specialist in Boston which had helped alot. He put me on midrodine and florinef. I did alot better and diddn't pass out at all but still had all the other symptoms. Four years passed, I did pretty well intill I got the flu twice back in april. After that I started getting very dizzy and passing out again. Now i feel the same as i did before. I was admitted to the hospital twice and was told to see the cardiologist I saw before. The one that thought I was crazy. He's doing all the heart tests I had done before. He told me it looks like it's something ealse now. He said I out grew pots. Does anyone know if that is possible? I don't understand why he keeps looking for stuff with my heart when they always say they cant find anything wrong. He's never even done the tilt table test. Is it possable that having the flu could of made this happen again? Do u think this cardiologist is worth keeping?

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I dont know what doc you saw before, but i see you are from maine -- and right around portland area../..i would highly recommend Andrew Corsello with cardiovascular consultants -- in scarborough -- 207-885-9905. this is the electrophysiologist i have seen for the past six years and he is VERY SMART. who is the doc you are currently seeing?

as for your questions, yeah, i think you could have pots -- again -- from your flu viruses you had. BUT, perhaps you have something else as well -- maybe PSVT or something, a "true" dysrrhythmia, not from autonomic dysfunction.

anyway, PM me if you want -- i think we live pretty close to one another! and actually may have spoken before via the net ?? your name rings a bell.

good luck to you and chat later!

cardiactec.

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Hi Heather,just my opinion,but I would try another dr. As far as outgrowing POTS I have heard several drs.say that POTS is a young woman's disease and they may outgrow it. I personally don't agree .I am 59,have had POTS for over 4 yrs. I feel some drs. have very very limited knowledge of POTS if any?

Good luck and I hope you feel better soon,Pat

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Hello and welcome! Glad you found us, but sorry you are having problems again with symptoms. POTS can come and go for many patients and is found in people of all ages, according to my doctor. Definitely stresses on the body, like illness, can bring out symptoms again. Hopefully you will respond well to treatment like you did before. It's not a bad idea to go ahead and have testing again to make sure nothing else is wrong--primarily for peace of mind!

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I have read (and heard) that many cases of POTS are in teenagers who get it when they have growth spurts. Once everything catches up and calms down, it goes away. I wish that were true in my case, but I'm afraid that at 31, I would have outgrown it by now!

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