morgan617 Posted June 27, 2007 Report Posted June 27, 2007 I have been diagnosed with Periodic Paralysis, a form of Muscular Dystrophy, or at least under the umbrella of MD.Someone on here besides ernie and I have described episodes of flaccid paralysis, but it completely escapes me who it is. If you are still here, please pm or email me, as I may have info that can help you.Still have pesky OI stuff, but many questions are now getting answered. Thanks and sorry I can't remember....morgan Quote
Sunfish Posted June 30, 2007 Report Posted June 30, 2007 hi morgan -i think you're probably thinking of linda/ dizzygirl?i'm glad that it sounds your appt was at least worth your time. i know that "answers" don't always bring solutions but hopefully understanding what is going on helps a bit, if only with one's sanity. melissa Quote
dizzygirl Posted June 30, 2007 Report Posted June 30, 2007 Morgan... Ive tried responding to your PM several times and it will not allow me to send a reply..i keep getting kicked off........just wanted you to know that i got your message and i called the MD office and am awaiting an appointment thru the clinic to be seen.. i thank you so much for the info! i wish you the best of luck in treat ment.. and BIG hUGS on finally getting some answers!HUGS~! Quote
morgan617 Posted July 3, 2007 Author Report Posted July 3, 2007 Well, there's no magic pill, but at last I at least have some answers! I hope it goes well for you sweetie..and thanks to those that responded to my foggy brain...morgan Quote
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