shayden Posted July 13, 2004 Report Share Posted July 13, 2004 Just to give you a summary...I currently have POTS and I was diagnosed approx 4 years ago. I became very symptomatic 4 months ago and have been progressively getting worse. I am now to the point where I have been restricted from driving, walking, standing, and various other everyday activities. Now...don't get me wrong...I do have my good times (notice I didn't say days), they are just so few and far between, that it is very hard to see the light at the end of the tunnel. For the past month, I have been experiencing symtoms that I have not had before. I have spoken with my Doctors and they say that these are not common POTS symptoms, but, I need to know if other POTS patients are experiencing the same things. I just have a feeling it could be related. Ok so here it is....1. Loss of bladder control - Tested for Infections - Negative2. Hives whenever I have a rush of adrenaline (BAD) - Tested for allergies - Negative3. Numbness in feet - starting on the edge with your little toe and the numbness moving in4. I faint a lot....now when I wake up....I panic! I either don't know where I am, or what happened, or where my son is. I mean things that I obviously know...but I just can't remember.5. I was at the Doctor the other day and he was checking my legs for strength/reflex. So he was telling me to do all kinds of things with my feet (i.e. push, pull), my legs, and my knees....and I just could not follow his instruction. I could not understand what he was trying to tell me to do and he finally had to physically show me how to do it.6. I can't remember anyone's name anymore that I meet. If I met them over 3 months ago...I do not have a problem....but past that....and I have no clue. And no matter how many times I meet them....I never remember their names.What is happening to me????Current Medications: Toprol XL 150mg, Zoloft 200mg, Topamax 100 mg, Lorazepam 2 mg, Provigil 100 mg, Midodrine 20 mgAny helpful tips or just knowing that I am not going crazy is all I am looking for.Thanks for always being there for me!!Susan Hayden Quote Link to comment Share on other sites More sharing options...
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