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A Pots Newbie


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Hey guys! My name is Kate. I'm so happy I found this forum. I have so many questions about what i'm going through. It's nice to know there are people who understand. I was diagnosed with POTS a month ago to the day. So now I'm having to figure out how to live my life as a 19 year old with POTS. I've found that my heart's bpm is the thing that's messing me up the most and not my blood pressure. I've only fainted a couple times due to a stomach bug and most likely a high heart rate and low bp. I'm just so tired all the time and not able to work but maybe four hours a week. I'm also in college and I've found that this hurts my concentration for some reason. Any tips would be helpful! I can't wait to meet all of you.

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Hi Kate,

You've come to the right place! My daughter is 21 yrs. old and has had POTS since she was 15 1/2. She also has a hard time with concentration at school. Are you having a rougher time in the mornings? Chrissy has to take all her classes in the afternoon or she wouldn't even be able to go to school.

Have you seen a specialist yet? Are you on any meds? Chrissy is still having her meds tweaked somewhat. We see Dr. Grubb in Toledo, OH about every 6 months and he tries to deal with what's bothering her most at the time.

Hopefully you'll find alot of answers to your questions here.

Patti

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Hi Patti,

I think you're right about the mornings. I'll think about that when I schedule my next set of classes. The funny thing is that someone just recommended Dr. Grubb. I'm going to go ahead and get on the waiting list. Unfortunately he's out of state. I'm not taking any medications at this time except for glyconutrients which is a set of daily vitamins. It's seemed to help a lot of people with their health problems. I'm really nervous about getting on meds i'm really sensitive with it comes to side-effects. Thanks!

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Hi Kate,

Welcome to the forum! I'm glad you found us. I hope you can find lots of help, answers, and friends here.

You mentioned that you are sensitive to medication. Many of us are! There are two medicines you might want to talk about with your doctor that have very few side-effects. Florinef and Midodrine are often used to treat POTS and they are usually very well tolerated. You can learn more about treatments (medicines as well as non-pharmaceutical methods) on the DINET "What Helps" page.

I hope that college goes well for you and that you are able to make whatever changes may be necessary to continue your education there. One thing that might help your concentration is to lie down while studying (I almost always did this in college!). If you aren't getting enough blood flow to your brain, then it will make concentration even harder than it already is with POTS. But lying down could increase it enough that you're able to think more clearly.

Good luck!

Rachel

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