P SUDIK Posted February 23, 2007 Report Share Posted February 23, 2007 Hi everyone, has anyone heard of pots disease not "our" POTS ? Once when I had to go to the ER,they wanted to put me in isolation because they thought I had pots disease (not sure of the spelling,have not found it on the internet ), anyway ,it may have something to do with TB.Yesterday i went to the hospital for a procedure and of course ,not one dr. or nurse knew what POTS was. The dr. did however ,elude to this other pots. Also my sister asked her dr. if he knew about POTS. he also said something ,about this other disease having to do with the lungs. Anyone ever heard of this? Pat Quote Link to comment Share on other sites More sharing options...
persephone Posted February 23, 2007 Report Share Posted February 23, 2007 Your medics may be thinking of POTTS disease( 2 t's). I thought it was something to do with bones, though. Quote Link to comment Share on other sites More sharing options...
P SUDIK Posted February 23, 2007 Author Report Share Posted February 23, 2007 Per, thanks for replying, now that you told me how to spell it Potts Disease , I have many hits on the internet , you were right about affecting the bones and it says it come from TB. thanks I was just curios since several people mentioned it. Pat Quote Link to comment Share on other sites More sharing options...
ellen Posted February 23, 2007 Report Share Posted February 23, 2007 Thanks for that info- it's good to know. I often have to spell it out: "Postural Orthostatic Tachycardia Syndrome" before people (especially medical/dental ) understand what I'm talking about. Quote Link to comment Share on other sites More sharing options...
flop Posted February 24, 2007 Report Share Posted February 24, 2007 Pott's Disease was named after Percival Pott a surgeon from London, England (1714 - 1788).It is tuberculous (TB) infection of the spine - usually it has spread from TB in the lungs.Fortunately it is nothing to do with POTS - I think we've all got enough problems without adding Pott's disease to the list!flop Quote Link to comment Share on other sites More sharing options...
pickledfairy Posted February 24, 2007 Report Share Posted February 24, 2007 Too funny,I too had an ER resident pull out his palm pilot and say...."here it says you have infectious TB" and then he laughed and said, "thats nothing like you have been explaining to me are you sure you are telling me everything or are you just smarter than my little pocket medical dictionary?" We got a good laugh out of it, but I never researched to see what he could have found by mistake....I learned something new today!Sheridan Quote Link to comment Share on other sites More sharing options...
Roselover Posted February 24, 2007 Report Share Posted February 24, 2007 My PCP was excited to find me a doctor that specialized in POTS. I waited almost a month for the appointment. The doctor walked in and introduced himeslf and said "I specailze in Potts disease. Unfortuneately, that's not what you have..." and then he explained that Potts was degeneration of the spine due to TB. So we waited a month and paid a copay to be told that I should be thankful I have POTS instead of Potts! (which I am... it sounds terrible!!!) I went back and explained the difference to my PCP and told her to change my file to say "Partial Dysautonomia" instead of POTS so it wouldn't be misunderstood again. ~Melanie Quote Link to comment Share on other sites More sharing options...
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