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Mastocytosis


juliegee
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Hi All-

I noticed a few of you have Mastocytosis. I was wondering what your symptoms were and how you went about getting DXed.

I get "hives" that really don't behave like hives. They act more like little tiny flea or mosquito bites- but they aren't. Zyrtec and Singular help somewhat, but are barely controlling the unbelievable itching. These bumps sometimes grow quite large and act like boils. (They don't go away like wheals.) These hive symptoms seem to preceed autonomic problems. Does anyone else have anything like this?

Thanks in advance for your help.

Julie

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