dapy Posted July 15, 2006 Report Share Posted July 15, 2006 Hi,This is my first post, and I am hoping for a lot of helpful feedback. I have been feeling awful for approximately five years. I got diagnosed with neurocardiogenic syncope and pots. I started passing out every two to three months, at which time, the doctor put in a loop recorder to see what was happening. The recorder caught the heartrate going down to 30bpm for three minutes. I needed a pacemaker and have since had one put in. Although, I do not pass out any longer, I still have life altering symptoms. My heart races with any activity (140's), I have excessive fatigue that is not made better with rest, I am lightheaded all the time, heat intolerant, weak and moody.My question is this. Is there one medication that seems to help more than another. It seems like I have been given every medication available, but I do not tolerate medications well. What does everyone think of the SSRI's, midodrine, provigil, etc.? My quality of life on a scale of 1-10 is probably about a 2-3and I need to pick a medication and try to stick with it. I need advice. I need to hear your experiences. I feel like I am getting worse, and there is no hope in sight.Please let me know what has worked for all of you. Anxiously waiting for your help. ThanksPeg Quote Link to comment Share on other sites More sharing options...
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