photchkiss Posted April 21, 2006 Report Share Posted April 21, 2006 Hi, this is my first post. I'm dealing with POTS. I've just learned I have this about 4 months ago...I have made major adjustments to my lifestyle and I'm managing it fairly well. However, the most helpful thing I use to deal with this is Ephedrine, 25 mg every 4 hours on average. I don't have a active doctor relationship, I'm working on getting into see a POTS specialist. But I have had a full autonomic lab workup that has ruled out PAF. The report suggested I could have POTS but that clinical review was necessary. I know I have orthostatic intolerance, and my heart rate and BP measurements seem to meet the criteria for POTS.My central question is: is it unusual for someone with POTS to be helped so much by taking Ephedrine? If I don't take it, I have blood pooling in my hands and feet and other OI symptoms.And does the fact that ephedrine have a positie effect on my condition, tell us anything about the cause or type of autonomic dysfunction I have? Thank you all for this forum--I have been a reader over the past couple of months, and some of the suggestions I've learned from you have made a real impact on the quality of my life. Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted April 22, 2006 Report Share Posted April 22, 2006 Hi Joe,Just wanted to welcome you to the forum. Amber Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted April 22, 2006 Report Share Posted April 22, 2006 Joe, welcome to the forum. Not sure what type of folks respond best to ephedrine; but many do. If you've not read the main DINET site, I will point you to this page http://www.dinet.org/what_helps.htmand skim down to the the section on "vasoconstrictors", of which, ephedrine is one.Nina Quote Link to comment Share on other sites More sharing options...
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