Guest Julia59 Posted April 6, 2006 Report Share Posted April 6, 2006 Hi everyone!Question regarding BP---and when to measure it.Anyway, I measure my HR and BP before noon, sometimes right after I get up in the morning. I find that I am the most relaxed before noon, and I am likely to get the correct reading.As I told you my BP has been running really low---sitting is 95/65---standing--75/55----this is an average.My HR does not seem to go up like it used to when standing---this morning it only went up to 72. Otherwise it's in the 80s standing. The HR doesn't seem to compensate as much---or not at all.Do you think it's better for me to check it more often throughout the day? I don't like to do that, as I start to get more hyper adrengic/anxious as the day goes on, so I'm not sure i'll get a true reading. I'm not all together sure I have hyper-adrengic POTS. Bev told me I do, but no tests have been done to prove this. I just had the catecholamines tested on Tuesday----and this was because I requested the test.Today I have the cardiac echo (say a little prayer that it's OK)----- ---just to check my heart out due to the shortness of breath---and all the coughing. Now I'm figuring that the coughing was from a bad virus, as I'm not doing it nearly as much, and when I do a lot comes up---and my chest feels less heavy every day.The OI has been so bad lately, and I have not been able to venture out much, not even short trips to the store. I still push, but many times I get very disappointed and depressed. I have all the fatigue as usual, but my OI is probably at it's worst. They had me walk around briskly for the catecholamine test, and I was very weak, and had near syncope. My legs were so weak, then the left leg buckled several times. I don't know if this is the OI---or the myelopathy from my spinal issues.The BP is the main concern right now, as I don't know if this is how I am throughout the day. I imagine it must get really low at times when I stand or walk mid day or evening, as I have had several times where I have had near syncope----which is why I'm so much more limited. I do load up on salt, and drink a lot of water while i'm out. I don't wear compression hose which is something I need to try. It might make a difference and allow me to be more functional. I have been avoiding them, as I can't imagine how difficult it will be to pull them up my legs and body. My upper body strength is very bad---I can't even pull a door open in a store. I have to use my foot to pull open doors.Julie :0) Quote Link to comment Share on other sites More sharing options...
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