Poohbear Posted March 29, 2006 Report Share Posted March 29, 2006 I know you all aren't Dr's but will you give me your objective opinion? Am I making a mountain out of a molehill and simply don't have good coping skills or am I "right" and all these Dr's just ignorant and lazy? My cardio still has not called me back (see previous posts by me if you need more info). I do have someone calling their office this morning on my behalf. I think my cardio's response is going to be "I'm sorry you are passing out more but there's nothing more I can do for you" He has said that to me before in the past but I believe he is wrong. He could at least fight for me to get outpatient iv infusions or home health or something. I think in the cardiac world my condition is viewed as minor and not serious. I have extreme tachycardia with a normal rhythm = unpleasant but not serious in their eyes. I went to an internal med. Dr yesturday. He acknowledged how crazy it was that my heart rate and bp were so erratic but seemed to understand it was autonomic dysfunction and knows he knows too little about it and thus expects my "specialists" to treat this. When I questioned if his office would be willing to coordinate my care and help me he said I had too many specialists to coordinate. Right now I have 6 or 7. I told him the reason I had so many specialists was because the former Dr I saw in his practice said she wasn't comfortable treating this condition and told me to stick with my specialists for care. Then after hearing all my more recent GI issues referred me out to yet another specialist. So while he was somewhat critical of the # of specialists I have he also seemed to understand it's inevitable when dealing with autonomic issues and referred me out to another specialist Bottom line....I'm not much better. Still throwing up every day, passing out on a regular basis, blacking out even when I sit up etc. and yet I feel like they are all brushing me off. That makes me wonder.....am I expecting too much? Am I supposed to adjust to feeling this crappy and not being able to be up moving around and prepare myself for the next lecture which will be if I lay around I will make my orthostatic intolerance worse? (which is it??? Do they want me to try to avoid syncope or not????) Quote Link to comment Share on other sites More sharing options...
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