Guest Julia59 Posted March 10, 2006 Report Share Posted March 10, 2006 First I will start with the embarrassing questions. I have EDS, and i'm told by my PCP that I should have a colonoscopy. I tried to make up some excuses as to why I may not need it, -------she wasn't buying it. She is really a good Doctor. Anyway, i'm not sure what type of EDS I have, just that three doctors say I have it. I have a diverticulitis in my small intestine, and i've had it since I was a young adult---maybe teenager. I was first diagnosed with IBS, and then more testing, and a Dr. Slee found it. Then I was later told it was the size of a quarter, which is about the diameter of my small intestine. It's near the jejunum, ileum area. I have read medical journals that this can sometimes co-exist with EDS, but I can't remember which type.My concern is having intestinal injury with the scope. I will bring it up to the gastro Doc, but he probably doesn't know a thing about EDS. Nina, did you read this in the medical articles I sent to you, or am I losing my mind?Also, i'm blocked up more then ever, and i'm wondering how long any of you have gone before passing something. It's been 8 days for me. I'm bloated, but not miserable. I'm just missing the sensation that I have to go----I can't feel it. Do any of you get this, where you just don't have an urge to go----like i'm dead down there. Sorry---soooo---embarrassing....but I have to ask.Regarding SSDI. Have any of you ever dealt with your congresswoman/man or state senators? I have sent information to both, and both replied. My congresswoman can flag my case, but the senators can actually investigate it. When I was denied, part of the denial was based on a false report by the SSDI Doctor appointed to my case. In fact most of the decision was based on his lies. I read the reports over and over, and compared it to my mecial records. The more I did this, the more disgusted I got. The senators office told me to fax the SSDI Docs report, the second denial letter, and the most recent medical evidence showing that the SSDI Doctor is putting false information in his medical evaluation report. I was told there would be an investigation in the main office in Maryland. I did this in July of last year. I followed up in the fall, and have never had any of my calls returned from the senators case work office. Finally while looking into some of my medical records, I decided to get brave and go into my little black briefcase and go over some of the SSDI stuff. I called the senators office---I got lucky and caught the case work guy. He had a pocket full of excuses as to why he didn't return my calls. I remained patient, and asked him to look into the status of the investigation. He seemed lost, and told me he will check into it and call me back. Well, I had to fax everything to him again! Is this typical? My attorney seems to think contacting the senators office is useless. My local office said it will take two more years for the hearing. When I talked to the case work guy, he said that wasn't true, and that they hired more judges. I just think SSDI drag their feet because they want us to give up--------well now they are playing with people's livelihood. The delays are getting much worse.Well---that's it. Thanks for reading.Julie :0) Quote Link to comment Share on other sites More sharing options...
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