AJVDK Posted March 5, 2006 Report Share Posted March 5, 2006 Hello All,Well I went to the doctor on Friday. I am still having areally hard time, but have found a new way of dealing with it. I am going to therapy, talking more about how I feel, and reading lot about dealing with coping with a illness. I found that even when I am really down, I can stay postive and get thought it and keep my head up, and still feel good about myself. Its been hard, but I keep trying to stay poistive.So let me get back to my appointment on Friday. I was talking to my doctor and explaining how, I still think there got to be more going on, then POTS, and that I am worried. I bought with me all my medical records, which the ones from Mayo just came early that day in the mail. I had a set of records but it never has the lab work, and test results like ECG, EKGS, Ecko's and so on. (Working on disablity stuff) When I started looking at them I found a ECG form last May ( Last time I went to Mayo) that is said on it: Final impressions: Episodes of possible pacemake malfunction were see thoughout the recording. The heart rate varied from 69-144 bpm. Rare ventricual pacing was noted. Rare single VPC'S were seen, Frequent SVpc's occurred singly and bigeminy. Occasional paired SVPC's were noted. Broef episodes SVT were noted and totalled eight. The lonest run of SVT was 5 beats. The maximum SVT rate was 133 BPM. S-T segment analysis was not done due to pacemaker. The patient recorded "Dizzy, shortness of breat". The ECG strip showed Atrial pacing with intermittent junctional rtythem and possible pacemaker malfuction. Rate 80 BPM. Drop in systolic Blood pressure or systolic reading that were below 80 mm occurred on 7 occasions. These ECG strips showed atrial pacing, Rates varying from 69 to 73 BPM. With Occasional possible pacemaker Malfution seen.So my doctor looked it over, and on Monday at 9:00 I am going in for a holter to see what going on. I am hoping it will so whats going on. I keep telling everyone I have felt so much worse since the Pacer was placed then before. But after going to Cleveland I thought it was just because I had POTs, anf they said the ablations could had been what is causing me to feel worse. In Cleveland the never looked at my pacer, they just did the TTT, Blood work, and the Blood Test where they look to see how your blood flows in your heart, and how fast though your body, ( Sorry can't think of the name of the test) .So now I was thinking what if it the Pacemaker? I would be a great thing if it is, as it would be a easy fix. Just replace it. I don't want to get my hopes up, but uptill I had it placed, I was playing hockey, working going all the tile, was passingout, and my heart would race but I could handle it. If I could go bsck to that, WOW I would love it. I would love to be able to go back to work, and not have to fight SSDI. I no it's a long shot but it would be nice. Have any of you ever hear of Pacemaker Malfnction? We please keep it in your thoughts, I am just hoping for somthing to turn this around, but also I need to stay grounded and realize this may just be my life, and if it is. Its ok. I have learned to be ok with who I am now. Plus I have learned alot about myself, and my son, now that I am home all the time. I guess what ever is ment to happen will.Thought I would drop this line and at least let you all know whats going on.Amy Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.