ramakentesh Posted November 19, 2005 Report Share Posted November 19, 2005 When i first got POTS I found that certain things I could not tolerate at all - alcohol and caffiene were no-nos and licorice tea always created a migraine in me.Ive found the changing nature of POTS the most confusing - the changing nature of symptoms (periods of dizziness, periods of food intolerances that come and go and conform to no apparent pattern, periods of medicine intolerances that also come and go without any pattern)Now I can drink licorice tea without any problem, can eat any food without an increase in symptoms and a beer actually helps (i dont know if this is because of its beta-depressing effects or its vasodilation which used to be bad for me).Bet blockers used to help me greatly, whereas now they just make me feel more out-of-it. Licorice has been the only thing thats been keeping me going - and i used to have a bad reaction to it.The strangest part of POTS for me is that I only get it when im back in my home city -and it always goes away when im overseas or out of town. Ive tried to find a trigger that is perhaps stressing my body and turning POTS on so to speak and I still cant find one. But the changing nature of POTS leads me to think that perhaps it is an autoimmune disease or atleast a result of the body under stress from allergies or intolerances. The fact that people can be on a medication that helps and then after a while it stops helping as the nature of their symptoms change is also confusing. If there was one underlying cause of POTS like something like Thyroid nodules or something, surely by targetting that one thing it would improve, whereas with POTS it seems that when you combat one facet of the disease, another one comes along to make it difficult.I wonder if the recent finding in the UK of cellular changes post flu for Chronic Fatigue patients means that post-illness pots is in the same boat?Im just rambling a bit because im frustrated that I have come home to all my friends and family and feel sick when i was overseas for two and a half months with barely any symptoms.I wonder what stresses long-term pots has on people's bodies?DO people actually ever get permanently better?? Quote Link to comment Share on other sites More sharing options...
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