Machair Posted November 27, 2023 Report Share Posted November 27, 2023 Does anyone else find being upright generates horrid panic feelings and if prolonged causes bowel upsets? I find in flares that standing causes my bowel to churn and often requires several toilet trips if it is a bad day along with all the other usual symptoms of dysautonomia. It is horrid as I have to be aware of the location of bathrooms. Quote Link to comment Share on other sites More sharing options...
MikeO Posted November 27, 2023 Report Share Posted November 27, 2023 18 minutes ago, Machair said: Does anyone else find being upright generates horrid panic feelings and if prolonged causes bowel upsets? I find in flares that standing causes my bowel to churn and often requires several toilet trips if it is a bad day along with all the other usual symptoms of dysautonomia. It is horrid as I have to be aware of the location of bathrooms. Yes, but i do not panic. best i can say is to see a Gastro Doc and discuss symptoms. I was just treated for SIBO and it helped greatly but i get a feeling SIBO is not popular term in the dysautonomia world as it does not come up that often but it will mess with folks more than one would think. I have seen IBS issues with folks but not so many resolutions to the root of it. See a gastro doc and good luck. Quote Link to comment Share on other sites More sharing options...
Pistol Posted November 28, 2023 Report Share Posted November 28, 2023 @Machair I have HPOTS and this used to happen to me when I would be overstimulated. For example once I went for a horseback ride ( not a very strenous activity and I am comfortable around horses ). But I was so looking forward to it that my sympathetic NS kicked in overdrive, resulting in pounding heart, excitement and - yes - a trip to the bathroom every two minutes. This is all part of norepinephrine dumping, which is part of our illness. Quote Link to comment Share on other sites More sharing options...
Machair Posted November 28, 2023 Author Report Share Posted November 28, 2023 Thank you so much for the replies. Pistol I really understand what you are saying it is horrid though isn’t it? Have you found anything that helps to prevent attacks? Quote Link to comment Share on other sites More sharing options...
Pistol Posted November 29, 2023 Report Share Posted November 29, 2023 19 hours ago, Machair said: Thank you so much for the replies. Pistol I really understand what you are saying it is horrid though isn’t it? Have you found anything that helps to prevent attacks? Well, not really except I try to avoid overstimulation. I am disabled and live a quite sedentary lifestyle, but we cannot live without stimulation or we might as well just never get out of bed, lol. So I just expect a flare as the price of willingly actually DOING something. I rest the day before an activity and for a few days after. So, a trip to the mall with my daughter would take me about four days to "digest". Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted November 29, 2023 Report Share Posted November 29, 2023 I don’t have time to look this up right now, but standing can cause excess catecholamines to be released, and I think that can cause feelings of panic and also diarrhea. People with hyperPOTS get a very large release of catecholamines, but I think it can also happen to a lesser extent in other POTS subtypes and other types of orthostatic intolerance. Dr Satish Raj often mentions testing for catecholamines in his talks (other doctors mention it too but I can’t think of any other names right now!). I can’t remember now whether he has any specific treatment advice. If you don’t mind watching a couple of his lectures it should come up. Quote Link to comment Share on other sites More sharing options...
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