Variations Day To Day With Symptoms

[Machair]

Does anyone else find that some days are so much better than others? I can do the same things on two consecutive days and one day will be reasonable and the next impossible or very difficult. It is impossible to predict which will happen. 
 Recently for example I went away to somewhere warm. One day I was able to walk in the sun  for a short time and sit in the shade comfortably,  but another day the same activity caused panic feelings sweating irritable bowel dizziness palpitations etc only relieved by dipping my feet into a cold fountain that helped somewhat. 
Anyone else see this difference from one day to another? 

[Sea otter]

Yes, symptoms are changing daily, practically from minute to minute. You never know what you will get. This is "normal". 

[albertspa]

Absolutely. It's tough to arrange much into the future, since even within the next hour things may shift and sway towards either spectrum of "good and bad". He taketh and he giveth away 🥸 Fluctuation is a known characteristic of POTS unfortunately. Narrowing things down to an average threshold, in terms of how bad it can get, is my method of choice when determining the progress of treatment in the long haul

[MattyT]

Yes, for sure the unpredictable nature of dysautonomia is something that I struggle with a lot. I look at it in two ways:

1) I know there are things which I should avoid; that includes excessive heat, dehydration, loss of sleep/fatigue. I notice this especially when I change time zones to visit family and there's a +6 hour time change and loss of a night's sleep. The good news is that these are things which you can learn to control and plan for and try to minimize. Never push beyond your limits. 

2) The second aspect is that there are always days when you try to do everything right and it still takes you down. Just like you said, it is unpredictable. I too ruminate over these times and try to sort it out. I think that's the right way to approach it. Accept that there will be some bad days and try to find the things that trigger them.

There's no magical formula for me but I am getting better at managing and preventing symptoms. 

[MikeO]

I have spent the last two years working on what causes or is the stressor in seeming sudden changes in my world. I have been picking them off one at a time (i reject its just the way it is) and end up laying in bed for 3 days. I can say i have made huge progress. not perfect but is obtainable as long as i stick to the plan.

Would love to just blame dysautonomia on this and give up but is not always the root of the issue. devil is in the data. 

[little_blue_jay]

Oh yes, not just day to day, but hour by hour and sometimes minute to minute, as someone else said.  

 

I can't find a rhyme or reason to it..  it's not sleep,  I've had days where I slept 6 hours and was functioning pretty well considering,  and I've had days I slept 10 and a half hours and was tachy all day, spent the whole day laying calmly watching TV (funny stuff only!), and just walking to the washroom giving me palpitations or eating a tiny bit making the tachycardia worse! No rhyme or reason! It's maddening...