Sarah Tee Posted August 28, 2023 Report Share Posted August 28, 2023 Not related to dysautonomia, but I got a horrible rash a week or two ago and have had to take a short course of prednisolone tablets to settle it down. I’ve only got one day to go, and the rash is a bit better, but they are making me mentally hyperactive and keeping me awake. I’m talking too much and keep getting up and walking from room to room, I can’t settle. But not enough physical energy to do some gardening or anything useful. I told my dad yesterday that I was feeling agitated and today when I was in a bad mood he started an argument with me instead of helping me distract myself. I know I am very annoying but I did hope for some understanding for another day or two. If I wasn’t unwell already, I’m sure I would be coping better. I’m supposed to be keeping very quiet to not provoke my OI symptoms while I slowly increase my calcium channel blocker. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted August 28, 2023 Author Report Share Posted August 28, 2023 My dad and I apologised to each other and had a cup of tea. But I am banning myself from any social contact with anyone for two days or until I feel better. Luckily I have no appointments scheduled. Last time I took steroids I felt fine, this time I’ve been so obnoxious. Thank goodness only one one pill to go. Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 28, 2023 Report Share Posted August 28, 2023 @Sarah Tee I am sorry for you, I know how steroids can make us sooooo irritable! My autonomic specialist always warned me not to take any because they would send my BP through the roof. Two years ago I was very sick and had to take two courses of steroids. Due to the severity of my illness at that time I did not kill anyone with my foul mood but I was sooo restless, could not ever get comfortable or sleep. I hated it! Just hang in there, the last day will be over soon. Then you just have to wait for it to leave your system and then take your Dad out to eat! Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 28, 2023 Report Share Posted August 28, 2023 7 hours ago, Pistol said: My autonomic specialist always warned me not to take any because they would send my BP through the roof. At one time i was ok with steroids like you mentioned my bp's went thru the roof as well as my BG's. they do help me breath better but at what cost. Quote Link to comment Share on other sites More sharing options...
Water Lover Posted August 28, 2023 Report Share Posted August 28, 2023 Total sympathy—doesn’t it seem like such a bother to have to medicate for things that aren’t dysautonomia-related, and then worry about/deal with the side effects of those on top of the normal stuff? I had to do a short course of methylprednisolone a few months ago due to jaw inflammation after some orthodontic changes. It was amping up my agitation (with no extra energy!), but also, I was advised by my GP that I needed to cut my salt consumption back to normal (for other people) levels while I was on it. I’m not sure whether it was the drug itself or abruptly cutting my salt, but a few days into the steroids, I started having ectopic heartbeats, which are not a normal symptom for me. Fortunately, everything (heart and mood) went back to normal really quickly, within a day or two of finishing the course. You’re almost there! Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted August 30, 2023 Author Report Share Posted August 30, 2023 @Water Lover, very true! I’m glad you felt better quickly when you stopped. No tablet for me today and I definitely feel less agitated. Hope to catch up on some sleep tonight. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted August 30, 2023 Author Report Share Posted August 30, 2023 @Pistol, urgh, we have all had bad experiences with them. The restless feeling must have been horrible for you in hospital. I am not quite well enough to go out (still working on my calcium channel blocker dose) but am shouting my dad and his partner to lunch tomorrow. I took my agitation out on some mending – ripping out stitches on old elastic which required no precision. When I am “normal” again I will put in lovely new elastic. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted September 4, 2023 Author Report Share Posted September 4, 2023 Oh dear, I just found out that I have to have another course of steroids for something else, higher dose too. I probably won’t be posting for a while as it’s best I keep my bad temper to myself 🙂 Will be back in a bit when I restart calcium channel blocker or ACE inhibitor. Quote Link to comment Share on other sites More sharing options...
Pistol Posted September 4, 2023 Report Share Posted September 4, 2023 @Sarah Tee I am sorry! Hang in there, dont fret if you become irritable. Your family will know this reaction by now. Best wishes. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted September 5, 2023 Author Report Share Posted September 5, 2023 @Pistol, the monster has not re-emerged yet! Unfortunately I have had some bad health news. Not life threatening but a big hassle to deal with. I found out I hadn’t been getting the the correct treatment for something for the last 18 months, allowing it to progress, hence the steroids (it’s an autoimmune skin condition). Bit of a shock. Did not take my own advice: to always double check your doctor’s advice against the consensus, national guidelines, etc. But have kind people to comfort me and urgent appt with skin specialist GP on Thursday. Three-hour drive each way though. Quote Link to comment Share on other sites More sharing options...
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