MikeO Posted August 9, 2023 Report Share Posted August 9, 2023 Hi Mike, After Dr. Deano has discussed this further with Tania and Dr. Goldberger, he would like to have you establish with the Autonomic Dysfunction Clinic at Froedhert. Please let us know if you would like to proceed with this option. Thanks, Taylor RN Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 9, 2023 Report Share Posted August 9, 2023 IMO good news. Means they realize they are at the end of their abilities. I would go for it. Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 9, 2023 Author Report Share Posted August 9, 2023 Oh @Pistoli already said proceed. I have been turned away from a referral to froedtert before. I am just hoping my cardiologist has the pull to get me seen. Big hug BTW. Quote Link to comment Share on other sites More sharing options...
Jyoti Posted August 10, 2023 Report Share Posted August 10, 2023 12 hours ago, MikeO said: I am just hoping my cardiologist has the pull to get me seen. Me too! Good luck and keep us posted. Quote Link to comment Share on other sites More sharing options...
GasconAlex Posted August 10, 2023 Report Share Posted August 10, 2023 Excellent to get a referral and I hope they take good care of you. At the very least they should be able to do a full range of testing which should show some of the scope of your issues. Hopefully this referral gets you seen. Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 10, 2023 Author Report Share Posted August 10, 2023 well my Cardiologist did get stuck with this for sure. I know he is not happy with the faint team and did say it outright with last week's meeting. He does have pull at UWM. More to the story coming. Notes below. i just hope that froedtert still will see someone like me. Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 17, 2023 Author Report Share Posted August 17, 2023 Well i am going with one more let down for now. I waited a week to hear back from Cardiology's referral to froedtert so i reached out and got a simple message that my PCP will do the referral with no explanation. I soo feel like i keep getting passed around. Sure my primary will discuss next month when i go in. I did fire my faint clinic for not doing their job. if all they can offer is tell you that you are orthostatic (which i already knew for years) and to drink more water sigh, well so be it, not very helpful. i just need answers and some help if it can be done. @Pistol Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 18, 2023 Report Share Posted August 18, 2023 @MikeO referrals take time, unfortunately. I would call the nurse that takes care of referrals at your PCP's office and check if she is already working on it. In this process it is all about communication, so I hope your cardiologist that mentioned the referral has also let your PCP know! Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 18, 2023 Author Report Share Posted August 18, 2023 @Pistolmy PCP office has been in contact. Again not sure why i am tossed around but my PCP did not request to do the referral. I know there is some animosity between providers. for sure Mayo will not take a direct referral from UWM citing they need to learn this stuff (and they know it) and the first time i did talk to Froedtert they pointed me right back to UW. While Froedtert does not have a dys clinic they do have a state of the art autonomic testing facility and two docs that work with autonomic dysfunctions. just hoping for some help. Best, Mike Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 22, 2023 Author Report Share Posted August 22, 2023 well one more let down. finally got a call from Froedtert and again they cited they do not have a dysautonomic clinic and when i pressed the response the gal did say they do testing and referred me back to the referring clinic. Too much. so i fired back at my PCP. will see where this goes. Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 23, 2023 Author Report Share Posted August 23, 2023 My PCP has one more gal working on this. she has been in contact with Froedtert and there is a process to be seen which is being pre diagnosed via tilt table which i have done twice and was revealing. she has been in contact with Dr Figueroa's office to get thru the process. All i can say is do not use the blind term dysautonomia and use autonomic dysfunction. sure there is more to my story coming. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted August 25, 2023 Report Share Posted August 25, 2023 @MikeO, what a bureaucratic nightmare for you. I sometimes wonder where helpfulness has gone in this world. When they got the referral, would it have killed them to send a form letter to the provider explaining the process to being seen? I suppose they get so many referrals that they want them to fail. But still … I have been dealing with some govt departments recently and have found that at every stage the staff will outright lie to try to get rid of people. Often their efforts to get rid of me take more time and emails than just dealing with my enquiry! I do hope it works out for you. Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 25, 2023 Author Report Share Posted August 25, 2023 @Sarah Teethere is help still in WI that much i know (contrary to what i was told). but i will never get why providers like the faint and fall clinic put their heads in the sand. drink more water and squeeze your butt when standing right? I will keep pushing to get help. what still gets me is some of the doc's write papers as to autonomic dysfunction and one in particular started the faint clinic yet they do not practice what they preach. Too Much. more coming Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted August 26, 2023 Report Share Posted August 26, 2023 @MikeO, you are a fighter. In Australia we have a phrase “Keep the b*stards honest”. It was coined by a politician – a good one! – who headed a small party that would fight for social justice, reform, etc. and try to expose wrongdoing on either side of politics. I think we patients have all had to do a bit of that in our lives. I do hope you get somewhere. Quote Link to comment Share on other sites More sharing options...
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