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New Medication


wibbleway
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I just got back from seeing Dr. Robertson in Nashville. He is trying me on a medication for people with Myastenia Gravis. I believe the name is Mestinon. Has anyone else tried this medication? Will let you all know how I do on it. Cathy

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Guest tearose

Cathy, I've just started looking into mestinon. A neurologist told me to consider it. What symptoms are you trying to control with it? What is it suppose to do for you? I went to the mestinon and myastenia gravis website and tried to learn more. I'm sorry I don't know enough about it right now, hopefully I'll learn from you! Feel better, tearose

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Dr. Robertson said they were having some wonderful results from Mestinon. I believe it can help with the blood pressure and heart tachycardia when standing. He said they have seen it give some relief from those symtoms. I seem to also have Sjogren's so the Mestinon can help with more tears and saliva also. I just started the medicine yesterday so I'll let you know how things go. Thanks for your interest and help. I will be checking my heartrate and blood pressure lying and standing today to see if there is any change. I'll keep in touch. Cathy :rolleyes:

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Mesitonin is used to raise blood pressure. I have heard from another board that you can't lay down for long after taking it. I really raised your pressure and is meant for standing up use. I think it lasts for about 4 hours. I have read a lot about it on a board for people with NCS.

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:rolleyes: Thank you for your information. This is my first full day and I'm having some problems. Headache and my chest feels like it needs to pump hard but can't. I do feel antzy and irritable. It seems to help my tachycardia but not helping me feel better. I'll try a couple of more days. Let me know if you hear anything else about this medicine. Thanks! Cathy
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