wibbleway Posted March 19, 2004 Report Share Posted March 19, 2004 I just got back from seeing Dr. Robertson in Nashville. He is trying me on a medication for people with Myastenia Gravis. I believe the name is Mestinon. Has anyone else tried this medication? Will let you all know how I do on it. Cathy Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 20, 2004 Report Share Posted March 20, 2004 Cathy, I've just started looking into mestinon. A neurologist told me to consider it. What symptoms are you trying to control with it? What is it suppose to do for you? I went to the mestinon and myastenia gravis website and tried to learn more. I'm sorry I don't know enough about it right now, hopefully I'll learn from you! Feel better, tearose Quote Link to comment Share on other sites More sharing options...
wibbleway Posted March 20, 2004 Author Report Share Posted March 20, 2004 Dr. Robertson said they were having some wonderful results from Mestinon. I believe it can help with the blood pressure and heart tachycardia when standing. He said they have seen it give some relief from those symtoms. I seem to also have Sjogren's so the Mestinon can help with more tears and saliva also. I just started the medicine yesterday so I'll let you know how things go. Thanks for your interest and help. I will be checking my heartrate and blood pressure lying and standing today to see if there is any change. I'll keep in touch. Cathy Quote Link to comment Share on other sites More sharing options...
scamelo Posted March 20, 2004 Report Share Posted March 20, 2004 Mesitonin is used to raise blood pressure. I have heard from another board that you can't lay down for long after taking it. I really raised your pressure and is meant for standing up use. I think it lasts for about 4 hours. I have read a lot about it on a board for people with NCS. Quote Link to comment Share on other sites More sharing options...
wibbleway Posted March 20, 2004 Author Report Share Posted March 20, 2004 Thank you for your information. This is my first full day and I'm having some problems. Headache and my chest feels like it needs to pump hard but can't. I do feel antzy and irritable. It seems to help my tachycardia but not helping me feel better. I'll try a couple of more days. Let me know if you hear anything else about this medicine. Thanks! Cathy Quote Link to comment Share on other sites More sharing options...
beala Posted March 21, 2004 Report Share Posted March 21, 2004 My teenager son just started taking it today. 60 mg Morning and at noon. I heard it can give you diarrhea. Will let youknow how it goes, he also takes inderal for his POTS. Quote Link to comment Share on other sites More sharing options...
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