scamelo

This is interestng information about clotting time. a few years ago I had surgery and they did a clotting test. I think the normal times for clotting are 2 mintutes to 8 minutes ( going by memory so could be off). My moms clots in 2 mnutes and she had a stroke a few years ago from a clot. My test time was 8 minutes, so it clots very slow. I don't hemorrage or have to wear a bracelet but this is interesting information.

I was just going by what the website has, the 650.00 is on as the initial fee. I did not know how much conventional he does. Good to know. Not sure why he does not take any insurance however.

My neighbor told me about dr Podell. He is more of an alternative natural/holistic Dr. from what I heard. Has a website, and his first visit is about 650.00 or so from what I remember. He has a radio show and she heard him on that. I would have tried him, but thought 650.00 or so was a bit too much. http://www.drpodell.org/

Hi Funny that you ask, I just started on Gabatril last week, andd I don't get seizures. It is supposed to work on GABA same way in brain as lorazepam but not be addictive. My problem is that I am taking 1/2 a 2mg ( lowest dose) pill at night and I am still much more tired and sleepy next day than without it. So far it has not done anything but the dose is very low. I am taking it because I get internal tremors or electrical feeling daily if not all day, and think it could be some kind of unknown anxiety. My BP since I started eating salt is normal most of the time and I don't faint, but did have drop in BP and Elevated HR ( 20bpm) during tilt table test. My internal shaking and electrical ( adrenaline??) feeling and tiredness are my worst symptoms. I do get dizzy occasionally as well off and on. I know many here have gotten tremors, but mine don't go away and I get them daily almost 24 hours a day and upon wakening etc. The lorazepam helped the tremors but I also take a small amount of that so I don't get addicted or too tired. I dont know if anxiety has anything to do with this, but we will see if I can eventually tolerate more of the gabatril and still be able to function. I am also on lopressor 12.5mg 3 times a day.

There are plenty of men who get this also and I did not get mine until 7 years after my 3rd child and plenty of woman are young and have not had kids who have this, so I don't think it has to do with having kids either.

I get internal tremors or what feels like electricial currents daily, most of the day. No dr. has figured out what its from. I have very mild pots and since I have been eating salt my BP has been fine and occasionally a little high once in a while. I am on lopressor 12.5mg 3 times a day. Ativan used to help with the internal tremors ( not visible on the outside), but I take very little ( 1/4 - 1/2 a .5mg table) for fear of getting addicted and it does not seem to help much. Have tried anxiety meds, but can only tolerate them for a week or two as I start shaking more. This is my worse symtpom.

I wish I knew, came out of the blew from nowhere at age 43. Had high blood pressure for several years, then went to low for some unknown reason. Did not have a virus that I am aware of, does not run in family etc. Sil

If 60-80% of the people were cured in a few months, we would not be hearing from any of them and most likely they would not know they even had POTS. Most likely they would think they had a virus and are now over it. I took almost 5 months to find what was wrong because I really pursued it and I have a very mild case, just those horrible internal jitters/current feeling that won't go away which is the worse. If I would have been getting better or cured say in 4 months, I would not have gone further to get diagnosed and would have thought it was a virus or something.

Mesitonin is used to raise blood pressure. I have heard from another board that you can't lay down for long after taking it. I really raised your pressure and is meant for standing up use. I think it lasts for about 4 hours. I have read a lot about it on a board for people with NCS.

Cedar Point was fun, especially for my 3 kids, But my symptoms started there, so my memory of it is not as positive as it should be.

Hi, I have been going to a chiropractor for years, even before dysautonia. I always get relief, but everybody is different. I go about once every 3 weeks and it really helps me.

HI I do not have the major swallowing problems that Dan has ( thankfully)) but in my case, that is how this whole thing started for me. I could not swallow solid foods without a mouthful of liquid for months. I lived on yogurt and ensure and pudding. I even went to the ER one night after taking an advil back in Sept because it felt like it was stuck in my throat, It wasn't but boy you sure could have fooled me. It was awful. It eventually went away, not even sure how or why, but glad it did. I can eat most anything now, and even though my mouth is dry at times, and here or there I need a little liquid, most of the time its normal and my appetite is back. I also lost lots of weight which little by little now that I can eat, I am sure I will gain right back. Wish I could tell you how mine went away, but I can't, but it did on its own. Now to work on the internal tremors. Sil

Please make sure you have your glucose checked if you have not recently. Its probably a POTS symptom, but that is classic diabetes as well.

No implants here, if anything I always wanted to be a bit smaller, no relation in my case

Hi, I have checked into Hyperparathyroidism. If the calcium is above normal there is a problem, mine was within normal, just on high end of normal. I have had so many tests in last six months. If i had not had the tilt table in cleveland, the mystery would have still continued