Birdlady Posted July 9, 2022 Report Share Posted July 9, 2022 I know many POTSies take florinef (fludrocortisone) on a daily basis. My PCP is blaming the sporadic use of fludrocortisone over the past 10 years on my lowered bone density. Are any of the POTS/dysautonomia clinics/doctors seeing an increase of osteoporosis in people who are not going through menopause? I'm still in my child bearing years. Are they checking for this in their patients? Is there something I can give to my doctor? I'd imagine POTS itself is causing the bone loss because I can't do weight bearing exercises or stand for long periods of time. If there's another thread about this, you can just link it here. I'm not feeling well enough to do a thorough search today. Thank you! Quote Link to comment Share on other sites More sharing options...
mehaller Posted July 10, 2022 Report Share Posted July 10, 2022 FYI, I just watched a web/video on Familial Dysautonomia, featuring the positive outlook on rosemary extract (caronosol) for FD patients. Also mentioned were positive results using it for osteoporosis. Have a gander Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted July 11, 2022 Report Share Posted July 11, 2022 I did find this past discussion. There may be more. https://www.dinet.org/forums/topic/3690-warning-osteoporosis Quote Link to comment Share on other sites More sharing options...
Birdlady Posted July 11, 2022 Author Report Share Posted July 11, 2022 4 hours ago, MomtoGiuliana said: I did find this past discussion. There may be more. https://www.dinet.org/forums/topic/3690-warning-osteoporosis Ty! Interesting to see that Dr Grubb was stating this in 2005. Quote Link to comment Share on other sites More sharing options...
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